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Dementia
Published in Henry J. Woodford, Essential Geriatrics, 2022
Caring for someone with dementia represents a major change and challenge in life. Carers are the cornerstone of effective dementia management. They need to be educated in dementia, supported and looked after. Both the person with dementia and their carer(s) will need to adapt. Roles in long-standing relationships will change. Sometimes it can feel overwhelming. Problems should be tackled one at a time, focussing on the most pressing first. Carers should be encouraged to get support and share their experiences with others. This can be through specialised support groups. Activity groups or social interactions, such as dementia cafes, are available. Respite time can be through day centres. Encouragement for the person to attend can be aided by their main carer coming along and by keeping the visits brief for the first few occasions. Residential respite care can also be considered (see page 33). In combination, these measures may be able to delay care home admission.93
Young Carers from Black Asian Minority Ethnic (BAME) Communities
Published in Cathy Laver-Bradbury, Margaret J.J. Thompson, Christopher Gale, Christine M. Hooper, Child and Adolescent Mental Health, 2021
When young carers are caring for more than one member of the family, this brings an added burden to their everyday lives. Discussing the opportunities for respite care can be important as a way to help relieve some of the burden of care.
Who Will Move the Next Mountain? Congregational Hospitality and Community Involvement
Published in Robert C. Anderson, A Look Back: The Birth of the Americans with Disabilities Act, 2018
William A. Blair, Dana Davidson Blair
Respite Care Teams/Programs. Respite care provides relief to full-time caregivers. The makeup and structure of such ministries reflect the diversity and needs of each congregation. For example, one congregation in Pelham, Alabama set up a program where parents can bring their children with disabilities, and their able-bodied siblings, to the congregation on Friday nights. Trained volunteers involve the children in an evening of fun activities while the parents go out. For full-time parental caregivers, this is indeed a luxury.
Balancing Caregiver Resources Provided by Michigan’s Area Agencies on Aging
Published in Journal of Gerontological Social Work, 2023
Joan Lynn Ilardo, Sherri King, Angela Marie Zell
When designing the questionnaire, the team purposely did not explicitly define caregiver services so that a restrictive definition would not preclude the AAAs from responding regarding some of their innovative services and supports. Services that directly benefit caregivers are either offered by AAAs or by their contractors. These services include but are not limited to case management, counseling, education, respite services, information and assistance, outreach, supplemental services, support groups, training, and transportation. Respite services can be in the form of adult day services, chore services, home-delivered meals, home health aide, homemaker, in-home, out-of-home, and overnight respite care, as well as kinship respite care, volunteer respite care, and personal respite care.
Infants, children, and youth in foster care with prenatal substance exposure: a synthesis of two scoping reviews
Published in International Journal of Developmental Disabilities, 2023
Lenora Marcellus, Dorothy Badry
Caregivers of infants, children, and youth with PSE benefit from having a strong understanding of health and developmental implications, alongside knowledge of available supports within the community. Child welfare agencies should make special efforts to recruit those interested in fostering a child with PSE and should provide adequate information to potential care providers to ensure that their expectations are realistic. Foster care providers should also be provided with specialized age-specific additional support, which should include education on how to adapt parenting skills and providing links with support and advocacy groups (Bobbitt et al. 2016). Providing respite care and appropriate community resources and activities were also key recommendations to support care providers. Adopting these measures in child welfare agencies could help to prevent placement breakdown, promote stability, and improve outcomes for children and families (Brown et al. 2007, Casanueva et al. 2014).
Health of aging families: Comparing compound and noncompound caregivers
Published in Journal of Gerontological Social Work, 2022
Fei Wang, Christina N. Marsack-Topolewski, Rosanne DiZazzo-Miller, Preethy S. Samuel
Overall, practitioners should be intentional about increasing their understanding of families of adults with disabilities because it is easier to find practitioners with the expertise to work with young children through traditional training programs. Formal caregiving services are quintessential in supporting the dynamic and complex needs of all caregiving families. Practitioners should connect aging caregivers with services, such as respite care. Through providing direct assistance to caregivers with various tasks, respite care allows caregivers to rest and focus on their own needs, which can reduce their feelings of burnout (Perkins, 2011). Given the various types of disabilities and medical conditions of care recipients, compound caregivers may be supported by different service systems (i.e., aging services versus disability services). Therefore, management and coordination of caregiver supports are essential. Social workers have considerable expertise in providing both services. These services not only help family members plan and coordinate caregiving duties among themselves, but also can effectively combine and coordinate aging and disability services to reduce care burden and cost (Perkins, 2011). Collectively, these services can improve psychological well-being and physical health in caregiving families despite caregiving demands.