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An overview of eHealth interventions to support caregivers. A review of evidence relevant to Young Onset Dementia
Published in Marjolein de Vugt, Janet Carter, Understanding Young Onset Dementia, 2021
Carers search the internet for information, which indicates readiness to use technology; however, the need for support may not be acknowledged until it is too late (Boots et al., 2005) and carers in LOD experience poorer life satisfaction and greater stress and depression compared to carers supporting physical illness. Depending on existing relationships, while a carer may not take on the identity of ‘carer’ but regard it as a normal life phase, the person with dementia may not recognise the need for support (Brodaty et al., 2005). Negative associations with dementia hinder the process of acceptance that enables people to engage with reality. Fear of stigma leads to concealment and denial, preventing people from seeking help in person. Such situations are exacerbated by cultural, familial, and religious or spiritual beliefs among ethnic populations (MacKenzie, 2006). Caregiver burden is mediated by resources to promote acceptance and helpful coping styles with skills to enable competence (van der Lee et al., 2014) and eHealth is appropriate for communicating with carers who may otherwise be difficult to reach. eHealth is particularly relevant for people facing adverse health that seems impossible at a relatively young age, difficult to understand and with life-changing consequences that challenge acceptance.
Occupational Therapy Student Research of the Needs and Characteristics of Dementia Caregivers
Published in Margaret A. Perkinson, Kathryn L. Braun, Teaching Students Geriatric Research, 2021
Sheila M. Ziff, Amy R. Schaffner
Interventions to alleviate caregiver burden and help family members successfully fulfill their “occupation” or role as caregivers have been many and varied in method. However, the current literature on caregiver interventions is large and often contradictory demonstrating the need for interventions that have a theoretical foundation and a greater impact (Knight et al., 1993).
Overview Of Psychosocial Factors Contributing To Stress Of Family Caregivers
Published in Zaven S. Khachaturian, Teresa S. Radebaugh, Alzheimer’s Disease, 2019
Despite these gaps in the literature and inconsistencies in the research methods used, studies overwhelmingly point to the adverse effects of caregiving for a person with dementia. Of particular note are the large number of methodologically rigorous studies citing caregiver depression as a major outcome. Other replicated findings include high levels of caregiver hostility, caregiver ill health and physical and emotional strain, increased psychotropic drug use and stress-related symptoms among caregivers, higher rates of health care utilization including more physician visits and prescription medications, and development of asocial behaviors.23,26 Space limitations of this chapter preclude a thorough review of the literature in this domain. Therefore, the following section provides an abbreviated overview of caregiver burden and stress, the physical and psychosocial morbidity associated with caregiving, social and financial responses of family caregivers, and cultural issues related to caregiving.
Caregiver Burden in Pulmonary Patients
Published in Journal of Gerontological Social Work, 2023
Bilge Yılmaz Kara, Derya Toprak, Ekrem Kara, Neslihan Özçelik, Songül Özyurt, Dilek Karadoğan, Aziz Gümüş, Ünal Şahin
Caregivers’ health problems are important contributors to the caregiver burden. Secinti et al. (2021) found that quality of life issues associated with caregiving do not vary substantially across chronic illness contexts, and they are largely unrelated to the perceived intensity of caregiving, when compared to non-caregivers. The findings of this study support the development and implementation of strategies to optimize caregiver health across illness contexts. The health status of caregivers seems to be a determinant of their ability to handle the problems. This suggests that, in addition to caregiving, the burden of having a physical illness may reduce the individual’s ability to deal with problems and make it difficult for them to use more positive problem-solving strategies (Korkut & Sertel Berk, 2009).
Empirical Evaluation of the “Caregivers Passage through Dementia” on African American Caregivers
Published in Clinical Gerontologist, 2023
Paula Susan Duren, Juno R. Moray, Peter Alexander Lichtenberg
An estimated 16 million unpaid caregivers in the United States provide care to persons with dementia, resulting in about 18.6 billion hours of unpaid labor each year (Alzheimer’s Association, 2020). This informal care overwhelmingly comes from family members who are providing support to a loved one with dementia. The psychological and physical burden that caregivers can experience is well-documented (Etters, Goodall, & Harrison, 2008). Caregivers have been described as the “second silent patient” because often the physical and psychological health difficulties they suffer as related to caregiving responsibilities go unaddressed (Brodaty & Donkin, 2009). Caregiver burden is related to negative outcomes for both the caregiver and the older adult with dementia. According to the National Alliance for Caregiving (2020), people who provide care for loved ones with dementia are more likely to experience high levels of stress compared to caregivers for other types of illnesses. Caregiver burden is also related to an increased incidence of depression and anxiety symptoms. The majority (74%) of caregivers are concerned about their ability to maintain their own health and are more likely to report the subjective experience of being in poor health. Caregiver distress is also related to negative outcomes for the person with dementia, such as increasing rates of institutionalization, exacerbation of behavioral problems, and incidents of elder abuse. It is essential that caregivers remain healthy because they are the cornerstone of family caregiving.
Perceived Decisional Control as a Mediator between Moving to Assisted Living Due to Caregiver Burden and Relocation Adjustment.
Published in Clinical Gerontologist, 2022
Natalie G. Regier, Patricia A. Parmelee
There are numerous factors contributing to the decision-making process, and the ultimate rationale for relocating to assisted living and other LTC settings is likely multifactorial. One common reason is related to the impact of caregiver burden. The risk of an involuntary move can be greater when caregivers perceive a high level of burden (Afram et al., 2015; Wergeland, Selbæk, Bergh, Soederhamn, & Kirkevold, 2015), usually defined as the physical, psychological or emotional, and social and financial problems that can be experienced by family members caring for impaired older adults (George & Gwyther, 1986). Family caregivers often choose various levels of LTC to alleviate both primary stressors (the demands and tasks of daily care) and secondary stressors (e.g., situations that develop or intensify as caregiving continues) (Aneshensel, Pearlin, & Schuler, 1993). In addition, some older adults opt to move before additional assistance is needed in order to avoid becoming burdensome in the future (Ball, Perkins, Hollingsworth, Whittington, & King, 2009; Krout, Moen, Holmes, Oggins, & Bowen, 2002).