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Postcolonial midwifery
Published in Hanna Laako, Georgina Sánchez-Ramírez, Midwives in Mexico, 2021
Nevertheless, currently this global mobilization has expanded and articulated itself rather from the viewpoint of human rights in childbirth, which combines midwifery activism with reproductive rights in maternal health. Sarelin (2014b) demonstrates that women now are using human rights as legal and political tools to demand change in childbirth. According to Sarelin (2014b), viewing childbirth mainly as an issue of access to healthcare is changing and subject to a new set of questions: who decides how a baby is born? Who chooses where birth takes place? Who bears the ultimate responsibility for the outcome of a birth? What are the legal rights of birthing women? What are the responsibilities of the caregivers—doctors, midwives, nurses and other attendants? What are the rights and interests of the unborn and how do we protect them during childbirth without subsuming the needs of the mother to the perceived needs of the child? Sarelin (2014b) argues that the global human rights in childbirth movement: (1) seeks a system in which women own their own births; (2) demands women-centered care instead of practitioner-centered care, which usually implies prioritizing midwifery care; and (3) demands that women be respected as decision makers in birth.
Treating and Supporting the Caregiver
Published in Danielle L. Terry, Michelle E. Mlinac, Pamela L. Steadman-Wood, Providing Home Care for Older Adults, 2020
The definition of a caregiver is a person who provides direct care to someone (Merriam-Webster Dictionary, 2016). In this chapter, we will be discussing caregiver issues for those who provide informal care to an older adult who requires help to function in his/her daily living.
The Influence Of Social Context On The Caregiving Experience
Published in Zaven S. Khachaturian, Teresa S. Radebaugh, Alzheimer’s Disease, 2019
Differences in caregiving roles often translate to different needs for and willingness to use support services.10,40,41 The support services for caregivers that are most commonly available are educational programs, support groups, and respite services which include volunteer programs, adult day care centers, and in-home chore and personal care services. Despite considerable consensus about the value of such services for alleviating caregiver stress and burden, a consistent research finding and lament of providers has been that support services designed to alleviate caregiver burden and stress go unused, especially by spouses, who have been shown to seek formal assistance relatively late in the caregiving career.24,42 This lack of service use has been attributed to (1) lack of perceived need on the part of the caregiver,43 (2) inappropriate targeting of services to caregiver’s needs,24,42 and (3) barriers created by providers in theway in which services are offered.43-47 Simply put, caregivers will not use services for which they perceive no need or for which the monetary, emotional, or physical costs of using the service outweigh the perceived benefits.
Overload and Emotional Wellbeing in a Sample of Spanish Caregivers of Alzheimer’s Patients during COVID-19 pandemic
Published in Experimental Aging Research, 2023
Álvaro Rodríguez-Mora, Tania Mateo Guirola, José M. Mestre
SPSS v.20.0 statistical software was used for the statistical analysis. A descriptive analysis of the sample was carried out to explore the profile of both types of caregivers. Before hypothesis testing, normality was tested using the Shapiro-Wilk statistic and homogeneity of variance using Levene’s statistic. Non-parametric tests were applied for the BDI-II. Parametric tests were used for the rest of the instruments. Correlational tests (Spearman) were performed between the variables of perceived changes in the care situation caused by the pandemic situation and emotional overload and wellbeing. Finally, a simple linear regression was performed to determine which variables of the perceived changes in the care situation caused by the pandemic situation would be predictors of overload and emotional wellbeing. The predictors were added in descending order of their corresponding correlation coefficient. A minimum confidence level of 95% (p < .05) was established.
A systematic review and qualitative synthesis of the experiences of parents of individuals living with Duchenne muscular dystrophy
Published in Disability and Rehabilitation, 2023
Clare M. Donnelly, Rosaline M. Quinlivan, Aaron Herron, Christopher D. Graham
The final analytical theme “Uncertainty as Ever Present” demonstrates the challenges parents face when planning for the future with their child’s ever-changing needs. Therefore, quantitative findings regarding greater prevalence of depression and, particularly, anxiety, amongst parents of individuals with DMD are not surprising when considered alongside this theme [13,59]. The precarity of their child’s health and uncertain future means that uncertainty must be tolerated. This may be compounded by the responsibilities of the caregiver role. For example, where parents indicated difficulty sleeping due to fears that not monitoring their son’s ventilation equipment could result in death [18]. On the other hand, there is variation between parents, with some coping well within this uncertain context, having developed a tolerance of uncertainty and resilience [8].
Health of aging families: Comparing compound and noncompound caregivers
Published in Journal of Gerontological Social Work, 2022
Fei Wang, Christina N. Marsack-Topolewski, Rosanne DiZazzo-Miller, Preethy S. Samuel
Overall, practitioners should be intentional about increasing their understanding of families of adults with disabilities because it is easier to find practitioners with the expertise to work with young children through traditional training programs. Formal caregiving services are quintessential in supporting the dynamic and complex needs of all caregiving families. Practitioners should connect aging caregivers with services, such as respite care. Through providing direct assistance to caregivers with various tasks, respite care allows caregivers to rest and focus on their own needs, which can reduce their feelings of burnout (Perkins, 2011). Given the various types of disabilities and medical conditions of care recipients, compound caregivers may be supported by different service systems (i.e., aging services versus disability services). Therefore, management and coordination of caregiver supports are essential. Social workers have considerable expertise in providing both services. These services not only help family members plan and coordinate caregiving duties among themselves, but also can effectively combine and coordinate aging and disability services to reduce care burden and cost (Perkins, 2011). Collectively, these services can improve psychological well-being and physical health in caregiving families despite caregiving demands.