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Understanding and Teaching about Diversity
Published in Ramesh Mehay, The Essential Handbook for GP Training and Education, 2021
Maggie Eisner, Arun Davangere, Jon Chadwick
Disability is defined as the end result of mental, physical or sensory impairments or long-term ill health which can limit functional ability. It is easier to teach about it if the group of trainees includes someone with a disability. If it doesn’t, it can be useful to ask the group to reflect on what they know of the experiences of any friends, colleagues or relatives who have a disability.
Injury Prevention
Published in James M. Rippe, Manual of Lifestyle Medicine, 2021
Disability is an umbrella term for physical, sensory, cognitive, and intellectual impairment, mental illness and chronic diseases characterized by significant activity limitations, participation restrictions, and impairment in body function and/or structure ranging from dyslexia to blindness and paraplegia to cerebral palsy. Clinicians should be aware of the significant and elevated risk of injury in individuals with disabilities.
Pulmonary rehabilitation in post-acute patients with COVID-19
Published in Claudio F. Donner, Nicolino Ambrosino, Roger S. Goldstein, Pulmonary Rehabilitation, 2020
Michele Vitacca, Mara Paneroni, Nicolino Ambrosino
Dyspnoea and fatigue at rest and during activities of daily living (ADL) using a visual analogue or a modified Borg scale (38,40). Asking patients to describe their symptoms during meals and their ability to self-groom. Disability
Critiquing the Critique of Advocacy
Published in The American Journal of Bioethics, 2023
However, the concept has relevance to bioethics debates as well. A debate is at present raging over the appropriate venue through which complex bioethical questions regarding health care resource allocation will be resolved. Clinicians have long sought to frame these debates as primarily questions of medical judgment. More recently, a growing faction of health economists and bioethicists have argued for making such decisions using the tools of cost-effectiveness analysis. Finally, disability advocates, including many representing persons with rare diseases, have argued for their placement in the world of civil rights law and social justice advocacy (Disability Rights Education and Defense Fund 2021). Each of these groups is engaged in a process of venue shopping, seeking a regulatory context that best shares their values. Each hopes for the establishment of a subgovernment under their preferred regulatory regime—and corresponding favorable terrain in the academy, where determining the appropriate disciplinary approach also shapes which claims are likely to be treated most favorably (Ne’eman et al. 2021).
Prevalence of amyotrophic lateral sclerosis in the United States using established and novel methodologies, 2017
Published in Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 2023
Paul Mehta, Jaime Raymond, Reshma Punjani, Moon Han, Theodore Larson, Wendy Kaye, Lorene M. Nelson, Barbara Topol, Oleg Muravov, Corina Genson, D. Kevin Horton
Patients may also seek to get approved for Social Security Disability Insurance (SSDI) and eventually Medicare (42). In addition, patients who are enrolled in Medicare may not be identified by the Registry if they do not meet the pre-requisites of the algorithm. Patients who have served in the military are eligible for both Medicare and VA benefits. It is believed most cases missed by all methods, and as estimated by capture-recapture, are patients who receive care outside of the Medicare and Veteran Administration health systems and who are covered either by private insurance or, to a much lesser degree, by Medicaid. Insurance claims data are available from a number of different systems such as Optum Health Services, Truven MarketScan, and IQVIA, but a major limitation is the unavailability of personally identifiable information (PII) (43–45). Without PII such as name, date of birth, age, or sex, the Registry is unable to match cases from private insurance with national administrative datasets. Furthermore, due to the variability and fragmented health care delivery model in the US, determining actual case counts is not possible as it is with ALS registries in Europe (countries with a single-payer health care system) (46). In addition, ALS variability from patient to patient must be mentioned as some patients may rapidly succumb to the disease and may never transition to Medicare or the VA systems. This may include ALS patients with fast disease progression, short diagnostic delay, bulbar onset, or lower ALS Functional Rating Scale – Revised (ALSFRS-R) when compared with slow progressing patients (47,48).
Impact of childhood maltreatment on psychosomatic outcomes among men and women with disabilities
Published in Disability and Rehabilitation, 2022
Michelle M. Pebole, Chelsea E. Greco, Robyn L. Gobin, Brian N. Phillips, David R. Strauser
In recent years there has been an increase in research highlighting the negative effect of childhood maltreatment and its impact on overall health in adult life [1–3]. Studies indicate a greater risk of poor physical and mental health and chronic disease among adult survivors of childhood maltreatment [4–11]. An individual with a disability is defined as a person who has a physical or mental health impairment that limits one or more major life activities [12]. Compared to the general population, individuals with disabilities are at higher risk of trauma exposure [13–15], and experience barriers to accessing quality healthcare services to treat trauma-related health issues alongside their preexisting health conditions [16–18]. Left untreated, the negative impact of trauma may compound over the lifespan and intensify the health concerns individuals with disabilities and chronic health conditions already face.