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Early AccessOverview of Third-Sector Support for Children, Young People and their Families
Published in Cathy Laver-Bradbury, Margaret J.J. Thompson, Christopher Gale, Christine M. Hooper, Child and Adolescent Mental Health, 2021
Christopher Gale, Alice Mooney
As one of the UK’s largest children’s charities, Barnardo’s (www.barnardos.org.uk) offers a range of services in the Southampton area, including: Miss-U: this service offers information and support to young people under the age of 18 who go missing, in some cases on multiple occasions. The service will arrange to undertake an assessment with the young person and their family or carer to determine if extra support is needed. They will then work to reduce the number of missing episodes and associated risks and work to prevent the breakdown of the home situation.U-turn: This service specifically targets young people at risk of or being sexually exploited.Family support: Offering help to parents, carers and families in the community and in diverse cultural circumstances. Guidance and advice aimed at supporting vulnerable children and their families.
What Do We Mean by Palliative Care?
Published in Victor R. Preedy, Handbook of Nutrition and Diet in Palliative Care, 2019
It is argued that the need for family support becomes more critical as patients progress towards the end of their lives on the palliative care continuum. It is at this stage that families can encounter many problems, and the provision of palliative care can offer opportunities to reconcile conflicts, heal relationships, provide counselling and commence bereavement support (Meghani, 2004).
Chronic disease prevention and management: An understated priority
Published in Bernadette N. Kumar, Esperanza Diaz, Migrant Health, 2019
Newcomers are most likely unfamiliar with navigating health and social systems. Facilitating resources like case managers, settlement workers, or volunteer groups are sometimes needed when family support is not available.
Non-Latinx Healthcare Provider’s Knowledge and Awareness of Latinx Geriatric Clinical Health Needs
Published in Clinical Gerontologist, 2023
Oswaldo Moreno, Isis Garcia-Rodriguez, Lisa Fuentes, Cindy Hernandez, Geovani Munoz, Kenya Fluellen, Sarah Hobgood, Lana Sargent
Although family overinvolvement was a barrier to seeking healthcare services, our healthcare providers noted that family support was an overall facilitator. This category was interesting as it highlighted how family members, in general, facilitate seeking care for Latinx older adults. However, this construct becomes a barrier when they become too involved (and intersect with stigma). Nonetheless, these healthcare providers noted that family members are usually caregivers. Such caregivers transport their elderly to appointments, help them fill out documents, and serve as overall healthcare allies. Kelly, a 45-year-old nurse practitioner, stated the following: I have a few Latinx patients who come with children or husbands. I always try to relay the information to the patient and the family, so they are more supported … Some patients even feel more comfortable with their family members doing the translation in the room.
Parents’ experiences of children’s health care for hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders
Published in Children's Health Care, 2022
Parents are an integral part of their children’s health care and occupy roles in decision-making, communicating with health professionals, delivering care, and supporting self-management (Aarthun & Akerjordet, 2014). Family-centered care also recognizes and integrates the important role of families in pediatric health care, ensuring parent-professional collaboration, information sharing, and family-support (Kokorelias, Gignac, Naglie, & Cameron, 2019). In the United Kingdom (UK), research has found that families of children with an undiagnosed condition have described health as requiring improvements to care-coordination, awareness, and advocacy, and that parents are emotionally impacted while managing uncertainty (Aldiss et al., 2021; Oulton et al., 2021). Similarly, research globally has identified that access to health services and information provision could be improved (Brannon, Ray, Lark, & Kindratt, 2021; Kiernan, Courtney, Ryan, McQuillan, & Guerin, 2020). Understanding the meaning and impact of healthcare experiences is therefore crucial to improve family-centered care. It is further recognized that different health conditions are associated with unique healthcare considerations, as outlined above, and this study considered families living with hEDS/HSD.
Longitudinal appraisals of family caregiving for people with disabilities enrolled in Medicaid managed care
Published in Disability and Rehabilitation, 2020
Caitlin Crabb, Randall Owen, Kaitlin Stober, Tamar Heller
While family support lacks a universal definition within the field of disability [10], Brennan, Rosenzweig, and Brannan [11] define family support as family-directed, composed of “formal and informal services and tangible goods.” Family support needs are varied. Some instruments that measure family support needs focus on needs of the family member with disabilities, though Samuel, Hobden, LeRoy, and Lacey [12] point out that the instrument developed by Brown, MacAdam-Crisp, Wang, and Iarocci [13] indicates that individual services may benefit the family as well. Most typically, family caregiver support programs include information, education/training, and respite services [14]. A study by Samuel et al. [12] found that families felt their children with disabilities had unmet needs for therapy (36.1%), education (26.7%), respite care (23.3%), and mental health support (22.1%). Furthermore, Caldwell [15] found that families of people with intellectual and developmental disabilities (IDD) had the highest percentage of unmet needs in the areas of therapies (37.6%), home modifications (37.3%), legal services (32.3%), and social/recreational services (30.3%). Other areas of unmet support needs included respite services (27.3%), day programs (22.8%), transportation services (24.2%), advocacy services (21.5%), behavior management (21.0%), and homemaker services (20.8%) [15].