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Treating and Supporting the Caregiver
Published in Danielle L. Terry, Michelle E. Mlinac, Pamela L. Steadman-Wood, Providing Home Care for Older Adults, 2020
Caregiver stress can lead to depression, anxiety, sleep disturbance, changes in appetite, low frustration tolerance, memory and other cognitive issues, withdrawal/isolation, and physical illness (Shultz & Beach, 1999). As caregiver stress escalates, it can interfere with the caregiver’s ability to effectively perform their caregiving duties or to provide an optimal quality of life for the CR. Caregivers may forego their own physical and emotional needs and prioritize the needs of the CR. However, this can lead to the caregiver becoming so ill they can no longer provide care to the CR.
Overview Of Psychosocial Factors Contributing To Stress Of Family Caregivers
Published in Zaven S. Khachaturian, Teresa S. Radebaugh, Alzheimer’s Disease, 2019
Burden, stress, and strain have emerged as important concepts in caregiver research. Caregiver stress has been defined by George and Gwyther15 as “the physical, psychological or emotional, social and financial problems that can be experienced by family members caring for impaired older adults” (p. 243). Spouses of persons with dementia may be at greatest risk for caregiver stress as they are often themselves elderly and are likely to have physical problems that limit their ability to respond to caregiving demands.21,27 Major findings from the literature on caregiver stress suggest that psychological morbidity (especially depression) is a frequent negative outcome associated with the caregiving experience. Decline in health status as a result of caregiving is also frequently reported by caregivers, but data on the physical health consequences of caregiving are equivocal and inconclusive.23
Working with Lesbian, Gay, Bisexual, and Transgender Families
Published in Gwen Yeo, Linda A. Gerdner, Dolores Gallagher-Thompson, Ethnicity and the Dementias, 2018
David W. Coon, Melen R. McBride
Meta-analyses and reviews of caregiver intervention research that have focused on caregivers of people with ADRD (Coon et al., 2012; Gilhooly et al., 2016) have been unable to identify the single best intervention to ease family caregiver distress and enhance well-being. However, several approaches (e.g., psychoeducational skill-building, cognitive behavioral psychotherapy) have been proven effective in reducing caregiver stress and distress. In these approaches, skill-building typically focuses on helping caregivers learn to manage care recipient problem behaviors and/or their own stress and distress (e.g., Belle et al., 2006; Gallagher-Thompson et al., 2003; Mittelman, Roth, Coon, & Haley, 2004). In contrast to these caregiver-focused interventions, intervention researchers have not been quick to intervene with care recipients in the early stages of a dementia in combination with their care partners. The early stages of dementia provide an opportunity for the early-stage individuals to be actively engaged in care choices and care planning for the trajectory of dementia. To date, three such projects have been implemented producing positive impacts on at least some outcomes, including reductions in dyadic stress and depressive symptoms (Coon, Todd, & Kapp, 2017; Logsdon et al., 2010; Whitlatch et al., in press). None of this research has examined the effectiveness of these interventions with LGBT older adults and caregivers. Clearly, the time has come.
A Descriptive Study of the Quality of Life and Burden of Mothers of Children and Adolescents with Type 1 Diabetes
Published in Occupational Therapy In Health Care, 2023
Erica Gallegos, Kasey B. Harmon, Gilliane Lee, Yongyue Qi, Vanessa D. Jewell
The results indicated a need for strategies to decrease or prevent burden for mothers of children and adolescents with type 1 diabetes as well as promote better quality of life. Occupational therapy practitioners are skilled in providing family-centered care that promotes increased occupational engagement and participation in everyday activities that lead to meaningful lives. Practitioners can help increase the quality of life of the mothers by facilitating the organization of daily routines, provision of education regarding diabetes health management, address mental health and wellness, and provide family-centered care. Additionally, practitioners help provide family and community resources and family-centered interventions which are important in reducing stress and burden on the mother (Law et al., 2003; Sullivan-Bolyai et al., 2003). Furthermore, one systematic review found that support interventions and training provided by healthcare professionals can help reduce caregiver stress, as well as improve quality of care (Aksoydan et al., 2019).
The effects of COVID-19-related stress among parents and children in Ohio child care programs: a mixed-methods study
Published in Children's Health Care, 2022
Kimberly Burkhart, Sonia Minnes, Owusua Yamoah, Ellen Doernberg, Sarah Balser, Timothy Ciesielski, Anastasia Dimitropoulos, Nora L. Nock, Darcy A. Freedman
Qualitative interviews indicate correspondence between survey findings and open-ended interview responses. Caregiver stress was mostly related to three main issues: 1. the task of combining work and taking care of children during the periods when child care programs were closed due to the pandemic, 2. the fear of participants and/or their families becoming infected with COVID-19, and 3. the potential exposure to the virus through the child care setting. One caregiver discussed that combining a high demand job with caring for her children was her major source of stress as reflected in the quote below: In the beginning, I was definitely stressed to the max as far as it went with worrying about COVID and worrying about the children and working … my work is a high stress environment in itself. So, I think doing all of that together, it really was very, very stressful in the beginning. Now that I think that everyone’s kind of adjusted to the new way of life and that the daycares are open, it’s definitely a lot different than it was in the beginning.
The experiences of well-being of family caregivers in palliative care: A qualitative study using thematic analysis
Published in Progress in Palliative Care, 2021
Tan Seng Beng, Yeoh Kee Ying, Cheah Ai Xin, Lim Ee Jane, Dong Chooi Lin, Lim Poh Khuen, David Paul Capelle, Sheriza Izwa Zainuddin, Loh Ee Chin, Lam Chee Loong
According to the Pearlin’s Stress Process Model, caregiver stress is a complex process involving the interaction of four constructs: the social context of stress, the stressors such as caregiving burden, role strains and intrapsychic strains, the coping resources and social support, and the outcome of stress.6 When the stressors of caregiving are not balanced with adequate coping resources and social support in the broader social context of the stress process, caregivers risk being overwhelmed by various outcomes of stress. Many caregivers have to endure the outcomes of caregiver stress such as depression, anxiety, irascibility, cognitive disturbances, physical health decline and yielding of role. They are preoccupied with providing the best care for the patients, feeling helpless when patients suffer, and experiencing significant disruption of their own personal and social life.7