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Chemosensation to Enhance Nutritional Intake in Cancer Patients
Published in Alan R. Hirsch, Nutrition and Sensation, 2023
Validated instruments for psychosocial distress screening are available and can be utilized in inpatient and outpatient oncology settings. These instruments are usually designed to be administered, scored, and interpreted by trained mental health professionals. However, nursing staff and other medical providers could receive training administering some of these instruments and referring to appropriate resources for intervention. Examples of these instruments include the Patient Health Questionnaire (PHQ; Spitzer, Kroenke, and Williams 1999), the Hospital Anxiety and Depression Scale (HADS; Zigmond and Snaith 1983), and the Brief Symptom Inventory (BSI; Derogatis and Melisaratos 1983). Many of these psychological assessment instruments include questions regarding appetite disruption and anhedonia, which could be influenced by chemosensory alterations especially if food and meals are a resource for patient’s socialization or pleasure.
Entropy and Healthcare in a Pandemic
Published in Lesley Kuhn, Kieran Le Plastrier, Managing Complexity in Healthcare, 2022
Lesley Kuhn, Kieran Le Plastrier
Research into healthcare practitioners’ experiences of working with COVID-19 (Bennett et al., 2020; Clay-Williams, Rapport and Braithwaite, 2020) indicates increase in entropy production associated with unavailable energy, uncertainty, disorder/dispersal and loss of information. These authors report exacerbated stress as pressure on everyday dynamic self-organisation associated with, but not limited to: Fear of contracting the virus or passing it on to family and friends; high workloads and long shifts; changing and inconsistent guidelines; inadequate cognisance of clinicians views by senior managers; lack of training; inadequate PPE; inadequate testing; lack of beds and respiratory equipment; new living arrangements (to protect family members); interpersonal isolation; and periods of quarantine. Psychosocial distress, associated with caring for patients as well as keeping themselves and their families safe, along with the physical requirements of new patterns of living, indicates the imposition of additional energy requirements on practitioners.
Psychosocial Aspects of Diabetes
Published in Jahangir Moini, Matthew Adams, Anthony LoGalbo, Complications of Diabetes Mellitus, 2022
Jahangir Moini, Matthew Adams, Anthony LoGalbo
Diabetes mellitus causes people to experience many changes in activities, lifestyle, relationships with others, and how to deal with medical and physical issues. Therefore, managing diabetes can have severe psychosocial consequences. The symptoms of diabetes can also mimic psychiatric disorders, making it difficult to formulate an accurate mental health diagnosis. Often, patients with diabetes are overwhelmed when they must follow the strict diet required for health, continually test blood glucose levels, and manage multiple medications. The chronic stress of diabetes mellitus can lead to depression, anxiety, panic, posttraumatic stress disorder, eating disorders, and even neurological outcomes. The direct relationship between diabetes and psychosocial distress is a real and significant factor that treating healthcare providers need to consider. Individuals with diabetes often need to make significant changes in their health behaviors and lifestyle in order to minimize the impact of this condition on their level of functioning. However, making these changes can be very difficult, especially without adequate support. Approaches to diabetes management can also be influenced by preexisting beliefs and cultural influences. A comprehensive understanding of all of these factors is therefore necessary in order to effectively address psychosocial aspects of diabetes care.
National survey of sibling support services in children’s hospitals
Published in Progress in Palliative Care, 2022
Kim Mooney-Doyle, Quinn M. Franklin, Samantha R. Burley, Maggie C. Root, Terrah Foster Akard
Siblings can simultaneously recognize the illness severity, yet want predictable, ordinary family life and time with parents and the child with serious illness. They are able to intellectualize the impact of the illness, yet desire normalcy3,4. Ultimately, siblings recognize family normalcy is forever altered and family relationships are changed. Parents and other concerned family members may struggle with their own psychosocial distress and may not know how to best support these siblings. Parents describe wanting support in caring for their healthy children and ‘keeping their family together’5. In healthcare settings, parents are coached in how to provide illness-related care and to manage family life by maintaining normality and taking care of themselves6. Parents report less guidance is offered for promoting family function and supporting siblings7.
User-centered practices in the eyes of informal caregivers of in-patients with severe acquired brain injury: needs, caring experience, and satisfaction
Published in Brain Injury, 2021
Giovanna Girardi, Maria Luisa Farnese, Federico Scarponi, Antonio De Tanti, Michelangelo Bartolo, Domenico Intiso, Rita Formisano, Gabriella Antonucci
A stress framework has been used to describe the burden of ICGs (16,17). Subjective assessment of ICGs’ needs and perceptions are essential when evaluating the self-esteem and well-being of family members, and appraising personal resources and coping responses in the face of stressful demands. Coping mechanisms may include proactive behavioral strategies, such as seeking the information and training necessary to provide adequate support (6,7,17–19). Ineffective coping strategies may lead to emotional distress and even burnout (20). On the whole, research has shown that providing care to an injured relative/friend is often associated with psychosocial distress and poor functioning of the caregiver (e.g. lower health-related quality of life and higher distress than in the general population) (2–21).
Candidates and candidacy: Patient, carer and staff perceptions of referral to a specialist palliative day unit
Published in Progress in Palliative Care, 2021
Introducing the idea of referral was followed by the next step of ‘getting people through the door’ and this theme captures the strategies that referring staff deployed to encourage attendance. There was an implicit sense that SP day care could support psychosocial needs however, symptom management particularly pain management offered a more explicit trigger for referral: I don’t exaggerate it, but if it’s there [pain] I will mention it just as a sort of extra trigger point. (Specialist Oncology Nurse CS11).You can support them, walk alongside them all those things we say, but you can’t change it [psychosocial distress] whereas you know you’ve got a chance with a symptom, a physical thing that you can improve. (Manager CS10)