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Where does dementia sit in modern society?
Published in Graham A. Jackson, Debbie Tolson, Textbook of Dementia Care, 2019
One in three people over the age of 50 who have Down’s syndrome are estimated to have dementia. Yet, with life expectancy only recently extending beyond the age of 60 for people with Down’s syndrome, this leaves the potential for a period of ageing with increased cognitive impairment whilst not “fitting” into aged care services which are typically for those aged over 65, or into learning disability services where the long-term focus in the UK is on independence, self-advocacy and informed choice. For some, pre-existing non-verbal communication methods, poor pain detection, increased sensory impairment and lack of accurate diagnosis of dementia mean that this group also stand out as presenting with new challenges in the 21st century requiring a different, yet related, response to the populations discussed earlier. For example, people with a learning disability are more likely to have physical health conditions that are not managed well. These conditions can either mask the early symptoms of dementia leading to a delayed diagnosis, or are assumed to be associated with dementia when in fact they are due to a different treatable condition. Examples in people with Down’s syndrome include: hypothyroidism, effects of obesity, sleep apnoea or ear infections caused by small ear canal and large adenoids. There is also increased propensity to self-talk; private speech aloud which is generally viewed as adaptive and a coping mechanism in people with Down’s syndrome rather than a concern.
Egocentric or social animals?
Published in David Cohen, How the child's mind develops, 2017
Bivens and Berk (1990) moved the research on by observing older children from 6 to 8 years of age who were working at maths problems. The researchers looked for three different kinds of verbal behaviour – first, irrelevant private speech such as comments to toys, to absent friends and word play; second, task-related egocentric speech such as sounding out numbers aloud; and third, external manifestations of inner speech, children muttering, lip and tongue movements.
Personal testimonies
Published in Jack Ryalls, Nick Miller, Foreign Accent Syndromes, 2014
P had also arranged for me to see a private speech therapist, starting straight after I came out of hospital. One evening, fourteen days after the stroke, I had this feeling that I sounded a bit French. The next day there was a speech therapy session. The therapist’s face after my first two words was unforgettable and she gasped: “Where did that come from?” I was Russian (more accurately Balkan, as I later discovered in a phonetics lab) complete with highly accented phoneme endings, wonderful consonants, a ‘xh’ sound in the back of the throat at the beginning of a significant proportion of the words (a voiceless velar fricative, like the ‘ch’ in Scottish ‘loch’, or German ‘nach’), spectacular rolled ‘r’s and the complete disappearance of /i/ which was replaced by /i/ (‘preety’ instead of ‘pretty’.) The sounds were deeper, produced further back, dark purple velvet, the cheek muscles more taut. I wanted to sing Russian songs because I could hear that quality of voice and instinctively knew how to make the back of my mouth and throat the right shape.
Public purse, private service: The perceptions of public funding models of Australian independent speech-language pathologists
Published in International Journal of Speech-Language Pathology, 2023
Tristan Nickless, Lisa Gold, Richard Dowell, Bronwyn Davidson
Successive Australian government healthcare policies endorsing privatisation (Aulich & O’Flynn, 2007) have facilitated an increase in demand for independent (private) speech-language pathology services1. This funding has validated the use of public provisions for access to independent speech-language pathology services through private providers within Australia for children and young persons2 seeking speech-language pathology management. Knowledge of public funding options for children and young persons with communication and swallowing needs assists individuals and families in the engagement of crucial primary care services through private providers. In principle, the allocation of public funding for procuring private speech-language pathology services promotes universal access. However, little is known of the facilitators and barriers that exist for accessing public funding of primary healthcare services such as speech-language pathology through Australian independent providers.
Pathways to paediatric speech pathology services in Australia
Published in Speech, Language and Hearing, 2022
Elena Just, Wendy M. Pearce, Sharon Crosbie
Availability of services. Parents expressed dissatisfaction and frustration with long wait times, limited choice of service options and appointment times. They were concerned about missing valuable therapy time and accessed private services because the wait for public services was too long: ‘Public at the time had an 18 month wait list which was unacceptable for us’ (P98); ‘We went to a private speech pathologist while on the waiting list for public to get the ball rolling’ (P101); and ‘For those who have to wait for public access it delays treatment and reduces the ability to self-select your practitioner and they don’t have the luxury of attending multiple appointments easily’ (P64). Limited availability meant that desired services were not accessed: ‘We could not find a time to suit us both so we had to finish with the issue still evident’ (P20); and ‘Currently no speech pathologist in community. Nil choice of services in rural/remote locations’ (P49).
The reliability of evaluating conversations between people with traumatic brain injury and their communication partners via videoconferencing
Published in Neuropsychological Rehabilitation, 2020
Rachael Rietdijk, Emma Power, Melissa Brunner, Leanne Togher
Hunter New England Human Research Ethics Committee provided ethics approval for the study initially (ref 12/06/20/4.04). This approval received recognition from The University of Sydney. South Western Sydney Local Health District Human Research Ethics Committee and Royal Rehabilitation Centre Sydney Human Research Ethics Committee provided site-specific approvals. Local staff members at the three research sites approached eligible patients to provide information about the project and obtain consent to share their contact details with the research team. Private speech pathologists and local brain injury support groups also distributed information about the study. The researchers then contacted participants (both people with TBI and their communication partners) and obtained written consent from both prior to their first assessment session. Participants were informed verbally and via the study information statement that while Skype had security and privacy protocols, communication over Skype could not be guaranteed to be completely secure and private.