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Cognitive technologies
Published in Alex Mihailidis, Roger Smith, Rehabilitation Engineering, 2023
Some cognitive impairments are inherited. For instance, individuals with Down syndrome have an extra 21st chromosome. People with this syndrome often have intellectual functioning that is significantly below average, combined with an impaired ability to adapt to the demands of everyday functioning. Fragile X syndrome is an X-linked dominant disorder. It is the number one form of inherited intellectual disability with one in approximately 4000 males affected. Individuals with fragile X have intellectual impairments that range from a mild learning disability and a normal IQ to severe intellectual disability and autistic behaviors (Cornish, Turk, & Hagerman, 2008; Garber, Visootsak, & Warren, 2008).
“I did everything humanly possible”: the process of making reproductive decisions in the context of assisted reproduction in Chile
Published in Tapuya: Latin American Science, Technology and Society, 2020
Areas that were previously considered morally neutral, therefore, become moral objects when human choice is involved (Bestard 1999). Rapp (1999) asserts that in the field opened up by reproductive technologies, pregnant women have become “moral pioneers.” Bernasconi (2015) proposes expanding the conception of the moral from the sphere of norms and what is correct to the sphere of value so that social studies can include the question of what is good or what is the “good life” to which people commit. Moral coordinates are a resource or a cultural tool that people can use to intervene in situations in which they find themselves and to give meaning to their experiences and decisions. These coordinates become explicit when people’s beliefs or stances are challenged (Bernasconi 2015). This is the case with ART. For example, Raspberry and Skinner (2011a, 2011b) describe how women diagnosed with fragile X syndrome have to review their reproductive imageries and decide what it means “to do what’s right”: does it mean to be “genetically responsible” and not have children who could inherit the gene?