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Developmental Issues for Young Adults With Cancer
Published in Sarah F. Kurker, Effective Group Therapies for Young Adults Affected by Cancer, 2021
Accessibility of these young adult support groups is vital. The following chapters will highlight not only the connections that occur in a face-to-face group but also those connections that stem from social media. “The accessibility of SM (social media) makes it an inviting option for connecting with others, particularly for individual who are geographically or socially isolated” (Shensa et al., 2020, p. 43). The incorporation of social media is particularly relevant with this population for the following reasons. Firstly, it’s the most common way they communicate. Secondly, many are unable to attend a live session (due to the immune suppressed protective orders). Thirdly, many support group participants are admitted to the hospital. And lastly, it is common to have chemo treatment side effects that prevent them from driving (examples are migraines, nausea and colds). These issues can prevent regular group attendance but allowing for SM connection can negate these obstacles and is an important aspect of a successful young adult support group. The group is a foundation for them to connect as a community. To have that continuous support needed to get them through the process of cancer and becoming an adult. The support group is the foundation of connections within the community that you create.
Human Factors and Patient Self-Care
Published in Richard J. Holden, Rupa S. Valdez, The Patient Factor, 2021
Barrett S. Caldwell, Siobhan M. Heiden, Michelle Jahn Holbrook
With the increasing availability of consumer-level information and ICTs, patient and caregiver support groups have been able to share not only formal information and research studies about their conditions, but also informal (or even tacitly understood) experiences about their conditions, a form of shared understanding described in other communities of shared expertise (Guinery, 2011). Informal caregivers of patients with Alzheimer’s disease as well as patients recovering from coronary artery bypass graft (CABG) surgery have used ICTs such as WebTV as far back as the 1990s (Brennan et al., 1998; Rogers et al., 1999). Clinical trials of such ICT use demonstrated that patients recovered faster to a stable health status, due in part to shared patient information about best practices, effective communication with nurses, and socioemotional support for patients and caregivers to give additional encouragement that “they are not alone” in their symptoms or experiences.
Niemann-Pick type C disease/cholesterol-processing abnormality
Published in William L. Nyhan, Georg F. Hoffmann, Aida I. Al-Aqeel, Bruce A. Barshop, Atlas of Inherited Metabolic Diseases, 2020
Seizures may be controlled with the usual anticonvulsant agents. Protryptilene and clomipramine are useful in cataplexy and sleep problems [100, 101]. Dystonia and tremor may respond to anticholinergic drugs. Supportive care including physical and occupational therapy is important. Support groups are available in the United States and in Europe.
Stress, Coping, and Quality of Life Among Custodial Grandparents
Published in Journal of Gerontological Social Work, 2023
Fengyan Tang, Ke Li, Mary Elizabeth Rauktis, Elizabeth M.Z. Farmer, Sharon McDaniel
Our findings imply that social work interventions need to focus on improving stress management to cope with parenting stress and daily stressors among custodial grandparents. They are struggling with high stress that is related to transition to parental roles, ongoing challenges of taking multiple roles, and managing grandchildren’s behavioral, educational, or health problems (Lee & Blitz, 2016). Social workers should be aware of grandparents’ parenting practices and stress sources, and provide effective coping resources and strategies that target the specific stressor. Stress management interventions can help with long-term implementation of stress management and buffer future stressors (Smith et al., 2015). At the mezzo level, social workers can link grandparents with support groups available in the community and provide information of and access to professional social services (Cox, 2020). Support groups are important sources to increase social support, reduce social isolation, develop a support network, and mobilize the existing social networks (McLaughlin et al., 2017). For some grandparents, a small group can work well and significantly improve formal support (Chan et al., 2019). During the pandemic, church and faith-based agencies were viewed as reliable sources of support, as shown in our interviews of grandparents (Authors, 2022).
Young Parents and Digital Technologies: Navigating Pathways to Enhance Agency for Vulnerable Mothers
Published in Journal of Technology in Human Services, 2023
Farnaz Zirakbash, Milovan Savic, Kay Cook
While welfare support workers in our sample also recognized the benefits of online spaces for informal support between young mothers, some expressed concerns that reliance on online resources might, in fact, further isolate these mothers: I think, in some circumstances, it could increase isolation because people are less inclined to go out and meet people in the outside world. (Welfare worker) Other welfare workers expressed concerns regarding the reliability of peer-to-peer advice on online platforms. They suggested that content moderation by family service providers could be one solution. However, given that these online communities are often hosted on an external platform with its own moderation rules and processes (e.g., Facebook), content moderation presents a challenge putting the privacy of welfare workers and young mothers at risk. Still, despite the concerns, support workers highlighted the importance of informal groups facilitated on Facebook or WhatsApp, particularly for marginalized mothers without strong support available otherwise. As illustrated in the quote below, these support groups allow for free or low-cost access to ongoing support.
A social work perspective on the opioid solution: a community-based expansion of the hub-and-spoke ecosystem
Published in Journal of Social Work Practice in the Addictions, 2021
Katie A. McCormick, Lori K. Holleran Steiker
For young people in recovery, strong supportive services increase the likelihood of abstinence and wellness. Recovery Schools and Alternative Peer Groups are specifically designed to aid in the process of SUD recovery by functioning both as academic and recovery support environments, as well as reinforcing and sustaining benefits gained from treatment (Holleran Steiker et al., 2015). Young people need communities to support their ongoing recovery and development. As such, Alternative Peer Groups that meet the social needs of youth outside of the school day through peer-led support groups, after-school activities and weekend events aid youth as they begin their recovery from addiction. In addition, another support for young people includes weekly family and parent support groups that meet the needs of the entire family impacted by addiction.