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Conclusion: the atlas of grief experience
Published in Dawne J Gurbutt, Sudden Infant Death Syndrome, 2018
These descriptions highlight grieving bodies and the response of the women themselves and others around them to the physical manifestations of their loss and grief. Coping with their bereaved bodies also sometimes involved managing the suppression of lactation – which was described by some as a traumatic experience, as it accentuated their loss. Some also felt a physical need for another baby and were already pregnant or planning for another pregnancy. Alongside this was the awareness of the physical effects of grief including sorrow and crying, but also physical aching, insomnia, depression, lack of appetite. One mother commented on feeling continually ‘nauseous‘ and another described an ‘abdominal griping pain’; they also described ‘pains in the chest’ and ‘headaches’, restlessness and also feeling of lethargy and fatigue . . . everything is an effort.’
Memoirs from a parallel universe: Dr Who and the cybernurse – compassion or competence?
Published in Lorna Foyle, Janis Hostad, David Oliviere, Illuminating the Diversity of Cancer and Palliative Care Education, 2018
Having looked at competence definitions in the context of this chapter, our attention should turn to our definitions of compassion in relation to the provision of cancer and palliative care. Compassion is defined comprehensively in the Oxford Dictionary of English (1989): the word owes its derivation to Latin com (together with) and pati (to suffer). Further definitions are laid out as follows: Suffering together with another, participation in suffering; fellow-feeling, empathy. A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering.The feeling of emotion, when a person is moved by the suffering or distress of another, and by the desire to relieve it; pity that inclines one to spare or to succour.Sorrowful emotion, sorrow, grief.
Specific and Generalised Learning Disability
Published in Quentin Spender, Niki Salt, Judith Dawkins, Tony Kendrick, Peter Hill, David Hall, Jackie Carnell, Child Mental Health in Primary Care, 2018
Quentin Spender, Niki Salt, Judith Dawkins, Tony Kendrick, Peter Hill, David Hall, Jackie Carnell
Subsequently, realising the lifelong burden, parents may become increasingly aware of their child’s difficulties. Intellectually, this may help them to cope. However, emotionally it may be quite a burden (chronic sorrow). They often experience fluctuations in mood, linked to the degree of acceptance of their child’s disability. Events that rekindle awareness of their child’s differences from others, and their loss of the anticipated and hoped for ideal child, may in particular cause a recurrence of sorrow. At these times further help is often needed. Sympathetic support and basic practical advice may often be sufficient (see below).
The multiplicity of caregiving burden: a qualitative analysis of families with prolonged disorders of consciousness
Published in Brain Injury, 2021
Laura E. Gonzalez-Lara, Sarah Munce, Jennifer Christian, Adrian M. Owen, Charles Weijer, Fiona Webster
When participants were taking care of spouses, in addition to suddenly becoming caregivers, they also described the burden of taking on family and personal obligations by themselves. Some of these responsibilities might have been previously shared with the patient, for example, parenting. Often the process of mourning, including anticipatory grief and complex grief, impacted significantly on their other roles. They mourn the impending death of the patient and, in some cases, sorrow lasts years of uncertainty with the caregiver unable to resume their own life. For example, many expressed that visiting their loved one was draining as they mourned the loss of a partner as the person they once knew. “I work, and I have three children and, you know, I’m pretty-much on my own … it’s very different when you’re alone as opposed [to] when you have a partner” (P5, A)“I’ve been informed that it’s like the seven (sic) stages of grieving, and you go through this regardless if the person’s passed away or that he is in the condition that he’s in” (P7, A)
What does an oncology social worker deal with in patient consultations? - An empirical study
Published in Social Work in Health Care, 2019
Sara Lilliehorn, Joakim Isaksson, Pär Salander
The contacts in this category (10w + 7m = 17, mean age: 62) was initiated either in connection with a relapse or when patients with chronic cancer experienced life as restricted. The mean number of sessions was 2.8 (range 1–9). These consultations concerned how to live with a narrowed perspective and how to be attentive and find meaning in life when knowing that death was approaching. Patients described how they struggled with sorrow, losses and anxiety, while at the same time trying to be present in everyday life. To many of the patients, the body was of special concern. A deteriorating body reminded of illness and death: Ms 85’s breast cancer developed when she was a young adult. When her cancer had metastasised, her physician recommended an OSW contact. She talked about how she felt different and excluded from a normal life because of her illness and side effects. She also talked about the paradox of being bound to the clinic and treatments that reminded her of illness and death. (Six sessions)
Social work intervention for women experiencing early pregnancy loss in the emergency department
Published in Social Work in Health Care, 2019
Ashley D. Palmer, Jodie Murphy-Oikonen
Grief is a normal emotional reaction of intense sorrow in response to a significant loss, most often experienced after the death of a loved one (Grief, 2018). Grief is an individualized experience and may affect physical, emotional, behavioral, cognitive and spiritual well-being (NASW, 2004). People grieve for the person they have lost and for the time shared together, and healing from the loss often involves treasuring memories of the deceased loved one. There are many unique aspects to the profound grief experienced by women who endure EPL (Harris, 2015). Given that pregnancy is representative of a new found identity for women as they assume the role of mother (Watson et al., 2018). While many women experience grief for the loss of the relationship that has been formed with the unborn baby in utero, the pain and heartache over the lost future combined with the loss of hopes and dreams is also a prevalent grief response for women who have experienced EPL (Bennett et al., 2005; MacWilliams et al., 2016). When pregnancy loss occurs, the identity of women as mothers is altered (Watson et al., 2018) and the future that is envisioned with the child dissipates.