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The Patient Empowerment Movement
Published in Disa Lee Choun, Anca Petre, Digital Health and Patient Data, 2023
The principles, written by a group called “People With AIDS”, set rights and recommendations for healthcare professionals, patients, and all those concerned by the epidemic. What initially seemed like a small gathering of people sharing their experience, rapidly became an illustration of the power patients can hold and deploy when their needs aren’t satisfied. The rights claimed for people with AIDS became universal rights for all patients. Among them, patients with AIDS have the right to full explanations of all medical procedures and risks, to choose or refuse their treatment modalities, to refuse to participate in research without jeopardizing their treatment and to make informed decisions about their lives. They also have the right to privacy and to confidentiality of medical records.
Basics of Law for Medical Examiners and Medical Examiner Officers
Published in Jason Payne-James, Suzy Lishman, The Medical Examiner Service, 2023
Nigel Callaghan, Gabriel Callaghan
Confidentiality is a fundamental tenet of professional ethics. Breaching confidentiality can damage trust in the medical profession. Indeed, a data protection breach, such as death records being left visible to the public on a desk or people discussing a death in a public area, could cause substantial harm if a vulnerable relative finds out about a death from the ‘grapevine’.
Introduction
Published in Fritz Allhoff, Sandra L. Borden, Ethics and Error in Medicine, 2019
In fact, communication enters into the ethics of medical error in lots of other ways as well. As we saw in Jésica’s case, it is important for providers and health-care facilities to communicate honestly, completely and quickly about mistakes so that they can be addressed responsibly and so that patients can make informed choices about their care and their options when injured. Promises of confidentiality are legally codified around the world in privacy laws and licensing requirements that limit disclosure of medical records, personnel actions, and patient–physician communication. Such guarantees are seen as vital to patient well-being and trust in the health-care professions. However, such guarantees also hide out of sight information that could help patients make more informed choices about their providers and health-care facilities; they also hamper our ability to address latent errors in health-care systems (Bosk 2006). And that does not even touch on micro-aggressions and omissions that issue from implicit bias or hierarchical pressures, potentially affecting intake and diagnosis at the very beginning of the medical-care chain. Neither does it account for the difficult issue of whether, when, and how to acknowledge responsibility for error or apologize for it at the very end of that chain. Communication affects the quality of medical care at virtually every juncture, as it calibrates the relationships between providers and patients, within medical teams, between administration and medical staff, between health-care facilities, even between computers.
Cannabis-Impaired driving: ethical considerations for the primary care practitioner
Published in Annals of Medicine, 2023
Katherine Huerne, Carolyn Ells, Roland Grad, Kristian B. Filion, Mark J. Eisenberg
Lastly, confidentiality is a key ethical principle to maintain trust in the patient-practitioner relationship. However, the duty to report can sometimes supersede this principle in certain situations. For example, if the youth is being provided cannabis by adults as a means of treating pain or psychological symptoms but cannabis or cannabinoids are not indicated medically [25]. This would fall under the domain of child abuse and neglect, and the role of a practitioner should be treated as such [25]. Another instance when confidentiality may be broken to the parents, but not necessarily reported to law enforcement, is when the youth shows disregard for safe driving protocols or misuse of cannabis while driving, despite the practitioner’s attempts at educating the patient of the risks [25].
Risk-Actuated Public Interest Disclosure Practices of Nurses Working in Mental Health, Pertaining to Confidential Information of Patients
Published in Issues in Mental Health Nursing, 2023
Darren Conlon, Toby Raeburn, Timothy Wand
Confidentiality is important in healthcare because certain personal health information can be personally embarrassing or have negative social repercussions for a patient (Barloon & Hilliard, 2016). Confidentiality is of even greater importance in mental health care because there is a persistent stigma of inherent dangerousness pertaining to a mental health diagnosis (Wand, 2012). Consequently, there is a public interest in ensuring confidentiality is respected (Kämpf & McSherry, 2006). Notably, there is no definition in law or contemporary literature for ‘public interest’ (Conlon et al., 2019). Instead, “[t]he term refers to a broad concept encompassing anything deemed to be in the interests of society as a whole” (Conlon et al., 2019, p. 1236; McKinnon v Secretary & Department of Treasury, 2005).
Development and Validation of the Barriers to Care Scale: Assessing Access to Care among Canadian Armed Forces Health Care Providers
Published in Military Behavioral Health, 2022
Christine Frank, Jennifer Born
Many participants indicated they were concerned about potential losses associated with accessing health services (i.e., confidentiality, privacy, anonymity, and control). As previously mentioned, CAF HCPs access care where they work, and thus do not have the same level of privacy (e.g., their colleagues are part of their circle of care) and anonymity (e.g., cannot receive care unnoticed) other CAF personnel typically experience when accessing care. Some participants also indicated concern about breaches of confidentiality, where others in the clinic or their superiors could illegitimately gain information about their medical history. Many participants also spoke about being concerned about potential career consequences. Participants were concerned that seeking treatment could result in (a) being put on a temporary or permanent medical category which would limit their ability to attend courses or be promoted; (b) not receiving a posting they want; and/or (c) being medically released. Last, some participants spoke about their concern that if they sought treatment others may treat them differently (discussed under social influences). Examples of barrier items relating to consequences of care seeking include, “Accessing care will harm my future chances of promotion;” “I’m not afforded that same privacy as other patients because my colleagues are part of my circle of care;” and “I have concerns about the confidentiality of the information I share.”