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Disability and the Definition of Health
Published in Joel Michael Reynolds, Christine Wieseler, The Disability Bioethics Reader, 2022
It is not clear, however, that the phenomenological view does much better than the totalizing WHO view in drawing a line between health problems and problems of other kinds. As proponents admit, conditions external to us can make our bodies opaque to us, as well. Someone who is stigmatized and excluded from social participation because of false perceptions of serious impairment is likely to be painfully aware of their bodily differences, as a result. Someone who is fired from their job because their employer believes that their distinctive way of speaking (‘speech impediment’) indicates intellectual limitations might, as a result, be much more aware of how they produce speech than they were before. Thus, it is not clear that phenomenology per se is sufficient to make the classic distinction – accepted by almost all models of disability – between those disadvantages of disability that are due to society, and those properly attributable to the state of the body instead.
The Dualistic Society
Published in Al Condeluci, Beyond Difference, 2020
Given this common approach of trying to fix that which we consider different, consider these situations: A person is poor – Let’s fix them to have job skills.A person is not well – Let’s fix them to be better.A person has a speech impediment – Let’s fix them so they can talk better.A person is depressed – Let’s fix them to be able to better cope.A child does not make the team – Let’s fix him to have more skills to better compete.A student is not so bright – Let’s fix them to know more. And on, and on, and on.
Civil law and negligence
Published in Jane Lynch, Tim Pettis, Ahmed Shoka, Medico-Legal Essentials Clinical Responsibility, 2018
Jane Lynch, Tim Pettis, Ahmed Shoka
➤ a child undergoes a tonsillectomy and adenoidectomy at the age of six years. A cleft palate was present at the time and the operation should not have been carried out. The child was left with a speech impediment and suffered both educationally and psychologically. The child has up until they are 21 years of age to bring a claim.
Too late for love? Sexuality and intimacy in heterosexual couples living with an Alzheimer’s disease diagnosis
Published in Sexual and Relationship Therapy, 2023
The participants with Alzheimer’s disease, five men and two women, had been diagnosed between two months and seven years prior to the interviews. All experienced mild to moderate problems in everyday life, including memory loss and difficulties with orientation and everyday activities, and one had a speech impediment. Some experienced living with a dementia illness as frustrating or frightening, while others argued that this was something one had to accept. Those more recently diagnosed expressed greater distress, whereas those who had been living with a diagnosis for some time voiced less concern. For example, 86-year-old Frida said that she was initially very distressed by the thought of becoming “a vegetable”, and being dependent on care, but that she nowadays, understood that care dependency was an unavoidable aspect of old age.
Disability Bioethics and the “Liabilities” of Personal Experience
Published in The American Journal of Bioethics, 2023
Let me begin by saying a bit about myself. I was born with cerebral palsy and live with multiple disabilities. Most prominent among them, I cannot walk. I have a speech impediment and only learned to talk as well as I do after 10 years of intensive speech therapy. I cannot type independently, nor efficiently read printed text. As such, I use a wheelchair and rely on a robust team of personal care attendants and research assistants to perform most personal and professional activities. Beyond my disabilities, I am a proud gay man. I live with my partner of six years who also lives with disabilities. I am a lifelong fan of Disney theme parks, Broadway musicals, and Hollywood films. I am also the first trainee with my level of impairment to complete a postdoctoral fellowship in bioethics at the NIH and the first postdoctoral scholar with cerebral palsy to be trained at the Stanford School of Medicine (Mintz 2022). Each of these aspects of my identity has shaped the kind of bioethicist I am and the projects I prioritize.
Speech-language pathology intervention in a youth justice setting: Benefits perceived by staff extend beyond communication
Published in International Journal of Speech-Language Pathology, 2018
Pamela C. Snow, Kerryn Bagley, Donna White
This understanding concerning links between speech and language skills and interpersonal functioning was a revelation commented on by many participants, and became better understood and appreciated, either through observation of the interventions or via training provided by the speech-language pathologist. Equipped with this new understanding, participants indicated that they were able to link speech and language difficulties to a range of behavioural challenges displayed by the young people, as this exchange between participants illustrates:So, some of our young people have a speech impediment, which [is] easier to identify, but for some of them it’s very difficult. And, I was quite surprised by some of [name’s] outcomes in terms of young people she identified that quite a high level of difficulty because they are generally what we believed to be our more compliant and… (Jenna)Organised… (Mark)Absolutely, and so most of the time we haven’t considered that there wasn’t something else going on for them because they don’t have a, a visual representation of that, so that’s been interesting as well, and particularly for you [speaking to B] I think, as some of the boys that were are in your unit may probably not have been highlighted. (Jenna)