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The value of a feminist approach in the ethics of end-of-life care
Published in Wendy A. Rogers, Jackie Leach Scully, Stacy M. Carter, Vikki A. Entwistle, Catherine Mills, The Routledge Handbook of Feminist Bioethics, 2022
Palliative care can be provided in hospitals, hospices, long-term care facilities, shelters and people’s homes. Access to quality palliative care is associated with higher quality end-of-life experiences (WHO 2020).
Universal Access to Palliative Care
Published in Rui Nunes, Healthcare as a Universal Human Right, 2022
Historically, palliative care was born with the Hospice Movement in the United Kingdom and the seminal role of Dame Cicely Saunders at the St. Christopher’s Hospice. This was the world’s first purpose-built hospice in 1967. It was founded on the principles of combining teaching and clinical research with expert pain and symptom relief with holistic care to meet the physical, social, psychological, and spiritual needs of its patients and those of their family and friends. Palliative care provides a new perspective on health and disease. The ethics of care was a fundamental tool for the translation from curative to palliative medicine. Indeed, it is a new ethic that underlies this type of care, thus enabling medicine and other healthcare professionals to reconnect with themselves and the values they have always embraced (Beauchamp and Childress 2012).
The healthcare continuum
Published in Edward M. Rafalski, Ross M. Mullner, Healthcare Analytics, 2022
At the end of the healthcare continuum we find palliative and hospice care. Palliative care is specialized medical care that focuses on providing patients relief from pain and other symptoms of a serious illness, no matter the diagnosis or stage of disease. Palliative care teams aim to improve the quality of life for both patients and their families. This form of care is offered alongside curative or other treatments you may be receiving. Like palliative care, hospice provides comprehensive comfort care as well as support for the family, but, in hospice, attempts to cure the person’s illness are stopped. Hospice is provided for a person with a terminal illness whose doctor believes he or she has six months or less to live if the illness runs its natural course.22 In the experience of some health systems, the nature of end of life care for COVID-19 patients was such that hospice care was not an option given the rapid nature of the progression of the disease and the highly critical acuity.
Improving access to palliative care clinical pastoral education
Published in Journal of Health Care Chaplaincy, 2023
Allison Kestenbaum, Kathryn D. Winters, Ayelet Ruppin-Pham, Matthew J. Valdez, Candis Cammon, Kathryn Hamelin, Kyle P. Edmonds
Palliative care is interprofessional care for people and their loved ones with chronic or serious illness, regardless of stage or prognosis. It addresses physical, emotional, and spiritual symptoms and improves the quality of life (CAPC, 2019). However, integration of spiritual care into palliative care teams remains a challenge at many healthcare institutions. When the palliative care team at an academic medical center in a large metropolitan area hired its first full-time, credentialed chaplain, the spiritual care team embarked on a quality improvement project and met with the interprofessional team in various constellations (individual, entire team, small groups by discipline) to assess the team’s perspectives about their vision for effective spiritual care. The most common topic of discussion included the observation from team members (including physicians, social workers, pharmacists, and nurses) that community clergy and hospice chaplains that they had worked with up until that point had received little to no formal palliative care nor clinical healthcare training. In parallel, the chaplaincy staff observed that most of the palliative care providers had minimal experience in communicating about spiritual needs or interacting with clergy and religious leaders who patients were consulting regarding medical decision making and inviting to the bedside for pastoral and ritual support.
Candidates and candidacy: Patient, carer and staff perceptions of referral to a specialist palliative day unit
Published in Progress in Palliative Care, 2021
This qualitative study uses a constant comparative analysis25 to explore staff, patient and carer experiences of referral to SP day care. Data collection took place during 2014–2015 at the local specialist palliative day care unit located within a hospice in the North of England, which has established links with the local University and research team. The hospice is a well-established service providing specialist palliative care through inpatient and day centre facilities as well as via specialist community hospice teams. The SP day care unit provides a range of interventions including; medical support; physiotherapy; occupational therapy; hairdressing and personal care, complementary therapy and psychosocial support. Patients usually attend for one day per week over approximately six to twelve weeks (depending on assessment and condition). Family carers can access a weekly hour-long support group if required. Patient referrals are generally via the General Practitioner (GP), acute hospital services (particularly oncology), community nursing teams including specialist hospice community nurses and patient self-referrals.
Inequity in palliative care service full utilisation among patients with advanced cancer: a retrospective Cohort study
Published in Acta Oncologica, 2020
Daniela D’Angelo, Marco Di Nitto, Diana Giannarelli, Ileana Croci, Roberto Latina, Anna Marchetti, Caterina Magnani, Chiara Mastroianni, Michela Piredda, Marco Artico, Maria Grazia De Marinis
Data collection from palliative care centres differs from that compiled in the Italian Hospital Discharge Register because, in the Lazio region, while the register is a centrally standardised database, palliative care data are not standardised nor centralised; as such, each specialised palliative centre collates its information differently. In addition, in the Lazio region, primary palliative care provision (i.e., care that is delivered outside the specialist palliative care service and that should be provided by general practitioners, and by hospital and nursing home staff) [25] is still rare [22]. Consequently, patients receive palliative care services mainly through specialised palliative care programmes, either at home or in a hospice, only after their condition has deteriorated.