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The Impact of Digital Technologies, Data Analytics and AI on Nursing Informatics:
Published in Connie White Delaney, Charlotte A. Weaver, Joyce Sensmeier, Lisiane Pruinelli, Patrick Weber, Nursing and Informatics for the 21st Century – Embracing a Digital World, 3rd Edition, Book 4, 2022
Charlene H. Chu, Aaron Conway, Lindsay Jibb, Charlene E. Ronquillo
The nursing profession espouses the value of advocacy for the needs of patients, families, communities and populations, as expressed in professional codes of nursing practice (Kalaitzidis & Jewell 2020). Broadly, patient advocacy by nurses relates to providing support and representation for patients to protect patient autonomy, preferences and well-being, while empowering valuing and respecting patients (Abbasinia et al., 2020; Kalaitzidis & Jewell, 2020). In the context of digital technologies and AI, the advocacy role of nurses is particularly poignant. In the following sections, we relate the issues of nursing advocacy to equity and access, suitability of technologies, and privacy, confidentiality and data ownership. We draw from a concept analysis by Abbasinia et al. (2020) that identifies five key attributes of patient advocacy in nursing in the context of digital technologies: safeguarding, apprising, valuing, mediating and championing social justice in healthcare provision.
Resistance: Part III
Published in Alan Bleakley, Medical Education, Politics and Social Justice, 2020
Patient advocacy is grounded in the assumption that some people will need others to speak up for them or to act on their behalf, either socially or legally. This may be because the patient is a child, or severely disabled, or elderly and suffering from memory loss or confusion, or suffering from mental health issues such as delusions, is homeless, or does not have healthcare insurance and so forth. In North America and Australia in particular, advocacy through laypersons is taken seriously as a career role and a lucrative business while maintaining a sense of dignity and commitment to social justice (Torrey 2015). But patient advocacy is a key role for healthcare workers too, and education in advocacy as a form of resistance to cultural and social inequities and inequalities is often missing or poorly represented in medical education.
Who else is involved, what do they do, and how can you engage them?
Published in Jim Ford, Gordon Parker, Fiona Ford, Diana Kloss, Simon Pickvance, Philip Sawney, Dame Carol Black, Rehabilitation for Work Matters, 2018
Jim Ford, Gordon Parker, Fiona Ford, Diana Kloss, Simon Pickvance, Philip Sawney, Dame Carol Black
The occupational physician is usually employed by (or contracted to) an employer. This relationship can lead to confusion, and sometimes to suspicion as to whether the occupational physician is really an independent medical adviser. The ethics of occupational health practice1 are clear enough in relation to professional independence and impartiality, but these issues often need to be explained to managers and to patients. One of the areas that regularly causes difficulty is that of patient advocacy. An employee may expect the occupational physician to take their side against managers in situations where there is some interpersonal or managerial dispute. Occupational physicians have to tread a careful line in giving impartial and factual advice, and in some circumstances the occupational health service may appear to be or even risks straying into patient advocacy where injustice (based on a misinterpretation of medical facts) seems possible.
nPEP protocol implementation and evaluation at a local US Crisis Center
Published in AIDS Care, 2022
Briana Ortega, Jennifer Thayer, Liwei Chen, Sandy Steblin, Rahul S. Mhaskar, Diane M. Straub
General experiences along care continuum: Patients were asked open-ended questions about their experiences with SAPT, pharmacy, law enforcement, and follow-up clinic(s). Themes emerged related to SAPT and law enforcement. One major theme was that SAPT experiences were overwhelmingly positive. Patients uniformly reported that staff were “comforting” and “supportive”, greatly easing difficult experiences (e.g., The people there were so incredibly “compassionate” … “and emotionally supportive, that really helped.”), with multiple patients spontaneously expressing gratitude for their care. One patient reported that having a patient advocate with her throughout the process helped her feel “less alone and it was nice to have someone separate from the medical professionals.” A corollary was that patients generally found pamphlets and handouts to be helpful. A second major theme revealed that, of those commenting on law enforcement (5/13), the majority (4 of the 5 commenting) were overall unsatisfied with law enforcement interactions. Issues included communication and follow-up, feeling unsupported by the police, and experiencing confusion about the status of their cases. One final theme had to do with follow up testing. Although there were a few anecdotal comments (including ambivalence about follow up testing, not wanting to address it, and uncertainty if testing was done in recent bloodwork), the predominant theme was that many patients expressed that there was no specific reason they did not receive follow-up HIV testing, possibly suggesting that targeted communication/intervention might facilitate this.
“The hierarchy is your constraint:” a qualitative investigation of social workers’ moral distress across a U.S. health system
Published in Social Work in Health Care, 2022
Sophia Fantus, Rebecca Cole, Lataya Hawkins
Patient advocacy, particularly at end-of-life, is deterred by untimely consults by members of the interdisciplinary care team. Social workers’ moral distress is triggered by the actions of colleagues and other health care professionals. The delay in social work consults hinders instructive and comprehensive psychoeducation. Rushed and ill-timed dialogue is a social justice issue, resulting in limited knowledge of a patient’s advance care plan and inadequate psychological preparedness for families. A Canadian study among health care social workers demonstrated that unrealistic expectations to hasten patient assessments and secure external resources were sources of moral distress (Jaskela et al., 2018). The current study demonstrates that social workers’ duties are entwined with others, whether it be the actions of members of the care team or the autonomous medical decisions of their patients, that constrain their ability to provide either effective, high quality, and compassionate end-of-life care or secure a continuum of care that aligns with their personal values.
First year medical student perceptions of physician advocacy and advocacy as a core competency: A qualitative analysis
Published in Medical Teacher, 2021
Elizabeth P. Griffiths, Michelle S. Tong, Arianne Teherani, Megha Garg
There would be benefit from future, more longitudinal, studies of medical student views on advocacy, and how views may vary based on institution and region. In addition, following medical student and resident views on advocacy at different stages of training is an important area of future study that would allow for a more robust understanding of professional identity formation with regard to advocacy and allow for tailoring of curricula at different stages of training. Some authors are currently exploring patient advocacy assessment in the clinical setting among third year medical students in the medicine clerkship, including exploring how students in this phase of training define advocacy. Finally, more in-depth follow up interviews or focus groups could help us better understand the individual students’ views with regard to physician advocacy.