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Grief
Published in Lisa Zammit, Georgeanne Schopp, Relational Care, 2022
Lisa Zammit, Georgeanne Schopp
Anticipatory grief is initiated with a grave or terminal diagnosis. The griever absorbs and adapts to the eventual finality of loss. This provides time for Patient, Family, and Clinician to complete “tasks of dying” and address “unfinished business.” These tasks include repairing broken relationships, saying “goodbyes,” and expressing what needs to be said.
Caregivers in Patient- and Family-Centered Care
Published in Amy J. Litterini, Christopher M. Wilson, Physical Activity and Rehabilitation in Life-threatening Illness, 2021
Amy J. Litterini, Christopher M. Wilson
Particular attention should be paid to the children of individuals with life-threatening conditions in order to best prepare them for further decline, and the ultimate loss, of their parent. As anticipatory grief is likely to occur following a life-threatening diagnosis, early intervention from a social worker and/or licensed counselor for grief counseling is indicated. For families receiving hospice care, grief counseling following the loss of a loved one is recommended to continue for a minimum of one year during the initial bereavement period. All significant dates within that time period, such as birthdays, anniversaries, and holidays, should be noted with special attention and support. Specific bereavement groups pertaining to the circumstances of a particular loss, such as motherless daughter groups, loss of a spouse, and groups designed for children following the loss of a parent, are recommended for professional and peer support. Many hospice agencies have grief support groups that are open to survivors within their community, even if the person/their loved one was not on hospice care. Spiritual counseling from a chaplain, and/or the individual’s clergy of their religion of choice, is also considered standard of care during and after a life-threatening illness in the family. Having a medical chaplain as part of the interdisciplinary team is critical for comprehensive care for all involved with patients at the EoL.
Child-Centered Play Therapy With Children Who Are Dying
Published in Lawrence C. Rubin, Handbook of Medical Play Therapy and Child Life, 2017
Terminally ill children experience a multitude of losses in relation to their illness (Aldridge & Sourkes, 2012), particularly that of normalcy. Illness is unpredictable and the child’s predictable and safe world changes as his or her disease progresses. The child also experiences a loss of one’s ability as the disease progresses. For instance, a school-aged child may lose the ability to control his or her bowels and along with it, the trust and confidence in his or her body to function normally. As the child physically deteriorates, the child’s autonomy is also lost. The child becomes more dependent on others for daily care. Strong emotions often accompany loss. Children may feel sadness, frustration, resignation, or anger toward the changes. Anticipatory grief is a common reaction to loss and entails the process of grieving in advance when a person knows loss is inevitable (Wolfelt, 1996). According to Wolfelt, grief is a natural and necessary process of coping. Grief and loss are two sides of the same coin and often accompany one another. Children express their grief and reaction to loss in multiple ways, with young children typically processing through their grief through the use of play (Pearson, 2009).
Making Meaning of Integrated Care during a Pandemic: Learning from Older Adults
Published in Clinical Gerontologist, 2022
Elizabeth A. Beasley, Theresa L. Scott, Nancy A. Pachana
Older adults’ lives have been disproportionately influenced by the pandemic, because of their lowered immunity, increased comorbidities, and consequential increased susceptibility to the virus (Ishikawa, 2020). While many older adults have adapted to the losses and hazards the pandemic has brought, some are experiencing grief, including ambiguous, anticipatory, and complicated grief or loss (Ishikawa, 2020). An ambiguous loss occurs when there is physical absence with psychological presence, or psychological absence with physical presence (Boss, 2010). Many older adults have lost sources of support, freedom, and independence, as well as access to social support and services, and the ability to plan for their future (Bertuccio & Runion, 2020). Anticipatory grief refers to a grief reaction that occurs in anticipation of a significant loss (Bertuccio & Runion, 2020). People around the globe, including older adults, are grieving for losses they anticipate will occur, including the infection and death of family and friends, as well as themselves. Further, many are grieving the anticipated loss of events or milestones, including birthdays, anniversaries, and weddings (Wallace, Wladkowski, Gibson, & White, 2020).
Caregiving for Parents Who Harmed You: A Conceptual Review
Published in Clinical Gerontologist, 2021
Jooyoung Kong, Anne Kunze, Jaime Goldberg, Tracy Schroepfer
Relatedly, adults who experienced childhood maltreatment by a parent are at particularly high risk for experiencing anticipatory and complicated grief throughout the perpetrator’s illness and after their death (Brown, 2012; Coombs, 2010; Crunk & Burke, 2020; Doka, 1999). During times of stress, such as a parent’s worsening illness, a history of maltreatment may lead to exacerbated anticipatory grief responses (Coombs, 2010) and further challenges with coping and interpersonal reactions. These expressions of grief (e.g., anger, sadness) can influence the relationship between the adult child and parent who is dying, thus changing roles and interactions. Understanding that emotional expressions may be coming from a place of grief can be particularly helpful for other family members as they relate to one another, and for healthcare and other helping professionals who may be charged with providing support to family members experiencing anticipatory grief.
Pediatric Palliative Care
Published in Hospital Practice, 2021
Benjamin Moresco, Dominic Moore
Grief and bereavement may include multidimensional reactions by children and their families [94]. Cognitive, psychosocial, and emotional reactions vary widely even in families who have been unified in their approach to the care of a child with serious illness. Individuals may see more value or sincerity in their own expressions of grief, resulting in conflict within families. Often the grief that some expect at the time of death begins much earlier. Anticipatory grief is a term referring to the loss and grief that families may feel even before a loss. While all grief is complicated, the clinical term ‘complicated grief’ refers to painful emotions connected to loss lasting longer than expected without improvement in the severity and impacting other aspects of one’s life. Among the risk factors for complicated grief, a death of a child or a sudden death are noted risk factors. As PPC teams work with families they are often able to address the grief that the child and family are experiencing as well as the impact it may have on interpersonal relationships [95,96].