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Managing care at the end of life
Published in Nicola Neale, Joanne Sale, Developing Practical Nursing Skills, 2022
For people living in social care accommodation, residential care or supported living, the support needs of the carers (paid or unpaid) also need to be considered. Carers may be involved in the person’s care throughout but would not have had the education or training in regard to palliative care practices to understand the relationship between ACP, mental capacity, best-interest decision-making, advance decision to refuse treatment (ADRT) and lasting power of attorney (LPA).
“He got down on one knee”
Published in Beverley Clough, Jonathan Herring, Disability, Care and Family Law, 2021
In the context of marriage, an accessible and supportive family law will facilitate and enable those intellectually disabled people who wish to get married to marry those whom they are in loving relationships with. Changes to how supported living environments are designed and constructed might be required to enable couples where one or both partners are intellectually disabled to cohabit with support in the community, as Amanda and James have been supported, and as Carrie has expressed a desire for in the future. Marriage and cohabitation do, however, come with financial consequences (particularly regarding benefit entitlements, but also in terms of running a household), and there is likely to also be a need for some educational support for disabled people around these issues, as well as to sex education, in order to facilitate equal access to marriage for intellectually disabled people.
Occupational Therapy in a mental health rehabilitation service
Published in Sue Parkinson, Rob Brooks, A Guide to the Formulation of Plans and Goals in Occupational Therapy, 2020
Marcia is proud of her Caribbean heritage, enjoying Reggae music as well as Jamaican styling and cooking. She also shows an interest in flowers and the unit’s chickens, and is being encouraged to get involved with garden-based activities. Eventually, she will need a new tenancy in supported living accommodation where her independence in everyday activities (including self-care, shopping, and cooking) can be supported. In the meantime, the team is encouraging Marcia to show respect for others and they recognise that increased participation will be easier for her if her joint pain can be better managed.
Responses to infectious disease outbreaks in supported living environments for individuals with neurodevelopmental disorders: a scoping review
Published in International Journal of Developmental Disabilities, 2023
E. A. Fitzgerald, M. Freeman, M. Rianto, B. Di Rezze
Supported living for individuals with NDD may include long-term care, group living, or in-home supports. Moreover, support can be facilitated through family, friends, educators, nurses, occupational or other therapists, psychiatrists, psychologists, social workers, or others. Support may facilitate and aid the functioning of individuals, however, supported living environments are vulnerable to impacts of emergency situations, such as infectious disease outbreaks, and natural disasters (World Health Organization 2001, Hota and McGeer 2007, Blackman et al.2020, Schnitker et al.2019). This population is facing unprecedented challenges due to the coronavirus disease 2019 (COVID-19) pandemic, which has highlighted challenges associated with caring for individuals in supported living during a pandemic (Hota and McGeer 2007, Buono et al.2021, Landes et al.2021). Furthermore, individuals with NDD are at increased risk of diagnosis and mortality due to COVID-19 (Gleason et al.2021), highlighting the severity of COVID-19 for this population.
Independent living of individuals with intellectual disability: a combined study of the opinions of parents, educational staff, and individuals with intellectual disability in Greece
Published in International Journal of Developmental Disabilities, 2020
‘Supported living’ is defined as an organized support system that focuses on the individual with disability and is designed to make it easier for the individual to choose how to live, work, learn, and participate actively in the community along with individuals without disabilities. Supported living is based on the philosophy that individuals with disabilities have the right to make responsible decisions, just like individuals without disabilities. The system includes training in life skills and professional skills, supervised care, environmental adaptations, and physical assistance. The aim is to integrate the individual with disabilities into society, bringing services to the individual rather than placing him in a structure that will provide such services (e.g. an institution) (Accardo and Whitman 2011). Support should be seen as a system of resources which enables individuals with ID to achieve (better) independence, community participation, and personal satisfaction.
A survey of the training experiences and needs of paraprofessionals serving adults with brain injury
Published in Brain Injury, 2020
Laurie Powell, Doug Gomez, Jeff Gau, Ann Glang, Amanda Perez, Jody Slocumb, Laura Beck, Matthew Dawson
Participants were individuals 18 years or older who fit into one of the following categories: (a) paraprofessionals (e.g., certified nursing assistants, rehabilitation assistants, job coaches, day program staff) currently working in medical, rehabilitation, educational, vocational, or day programs or supported living community settings in the USA and who had experience working with adults with brain injury 18 years or older.1(b) professionals (e.g., occupational therapists, speech-language pathologists, program managers, psychologists) currently working in medical, rehabilitation, educational, vocational, or day programs or supported living community settings in the USA who had experience supervising paraprofessionals serving that population;(c) adults living with traumatic or non-traumatic brain injury who received medical, rehabilitation, or educational services in the USA related to their injury;(d) family members of adults living with brain injury who received medical, rehabilitation, or educational services in the USA related to their injury.