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Christian perspectives on informed consent
Published in Joseph Tham, Alberto García Gómez, Mirko Daniel Garasic, Cross-Cultural and Religious Critiques of Informed Consent, 2021
In this context, it is indispensable that informed assent/consent exists regarding the risk and the entity of the risk. Christian perspective considers it legitimate to perform a non-therapeutic trial on a child with an actual capacity of informed assent and supported by the consent of the parents or legal representatives if there are no significant risks either for the life or for the physical integrity of the minor. The requisite of the minimum risk and or discomfort is ethically central.
Disorders of Consciousness and the Use of Neurotechnologies
Published in L. Syd M Johnson, Karen S. Rommelfanger, The Routledge Handbook of Neuroethics, 2017
Orsolya Friedrich, Ralf J. Jox
This concept of informed assent has already been transferred from pediatrics to adult medicine in the case of research or treatment for dementia patients (Black et al., 2010). There is no reason, in principle, why it should not also be transferred and adapted to the research and treatment of patients with DOC. Given functioning BCI technology in patients with DOC, informed assent may be sought in some circumstances and be considered in making decisions on research and treatment.
Getting the Best Out of People
Published in Bill Runciman, Alan Merry, Merrilyn Walton, Safety and Ethics in Healthcare, 2007
Bill Runciman, Alan Merry, Merrilyn Walton
Informed consent should usually be more than informed assent. Perhaps ‘informed choice’ would be a better term. The process should allow patients to ensure that all their options are considered, and to weigh up the benefits and risks of all sensible alternatives, including in most cases the alternative of doing nothing. Guidance from clinicians is essential, but in the end it is the patient who should decide what he or she wants and does not want.2
Addressing A Mental Health Intervention Gap in Juvenile Detention: A Pilot Study
Published in Evidence-Based Practice in Child and Adolescent Mental Health, 2023
Jennifer E. Duchschere, Samantha J. Reznik, Caroline E. Shanholtz, Karey L. O’Hara, Nadav Gerson, Connie J. Beck, Erika Lawrence
Potential participants were recruited from three of five separate living quarters, labeled “pods” by juvenile detention staff. Two pods were excluded from recruitment because one comprised only female detainees, and the other was specifically designed to assist adolescents struggling with substance use disorders. Adolescents from the other three pods were eligible to participate, and were recruited in either a group or individual format (a recruitment script was read by detention staff, and participants volunteered). Typically, one pod was recruited for BREAK, and a separate pod was recruited for the control condition. BREAK was delivered as an open group, and up to eight adolescents could participate in each session. Control participants were given the option to complete measures as a control participant only, or to be placed on a waitlist to join the group as soon as there was an opening. Given the recruitment restrictions imposed by the detention center, which did not allow research team members to recruit directly, it is unknown how many youths volunteered versus declined. Participants were aware of the condition to which they were assigned and provided informed assent. Since they were detained, the detention facility provided consent for the participants to volunteer for the study.
Factors that influence morningness-eveningness and daytime sleepiness: A cross-cultural comparison of Iranian and Brazilian adolescents
Published in Chronobiology International, 2023
Ali Nouri, Sareh Panjeh, Hugo Cogo-Moreira, Sabine Pompeia
Differently, the Iran sample was selected by multi-stage cluster sampling from 32 public and private high schools in Tehran. First, the city of Tehran was divided into four districts of north, south, east, and west. From each of these districts, eight schools were randomly selected: four primary schools (one private school for girls, one private school for boys, one public school for girls, and one public school for boys) and four secondary schools (one private school for girls, one private school for boys, one public school for girls, and one public school for boys). Fifteen students from each primary school (five students of each grades 4, 5 and 6) and fifteen from each secondary school (five students of each grades 7, 8, 9 and 10), totally 480 students (240 boys and 240 girls) were randomly selected to complete the questionnaires. Of this sample, 72 students (69 girls and 3 boys) were excluded because they did not participate in the study due to the school’s arrangement for semester examinations. One student (girl) was also excluded due to reporting extremely unlikely values on research variables. The final sample consisted of 407 (237 boys and 170 girls). The informed assent/consent was obtained from participants and their guardians following the agreement with the schools and describing the purpose of the research for parents, teachers, and students. All procedures were approved by the institutional ethics committee of the Education Office of Tehran (Approval code: D/100/10247; DATE: 2018‑11‑01).
A qualitative exploration of the salience of MTV-Shuga, an edutainment programme, and adolescents’ engagement with sexual and reproductive health information in rural KwaZulu-Natal, South Africa
Published in Sexual and Reproductive Health Matters, 2022
Nambusi Kyegombe, Thembelihle Zuma, Siphesihle Hlongwane, Mxolisi Nhlenyama, Natsayi Chimbindi, Isolde Birdthistle, Sian Floyd, Janet Seeley, Maryam Shahmanesh
Participants aged 18 years or older provided written informed consent. Participants aged 14–17 years provided written informed assent after written informed consent for their participation was obtained from a parent or guardian. Ethical approval was provided by the ethics committees of the University of KwaZulu-Natal (reference BFC 339/16, 11 October 2018), and the London School of Hygiene and Tropical Medicine (reference 16886, 25 April 2019). All study participants were eligible for referral if either they requested one or a member of research or study staff thought that they would benefit from one. Referral services were provided by DREAMS implementing partners and included psychosocial support and counselling, post-exposure prophylaxis, emergency contraception, voluntary counselling and testing, and intimate partner violence support services. No participants were identified to require a referral.