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Reflections on the History of Occupational Stress in Hospice/Palliative Care
Published in Inge B. Corless, Zelda Foster, The Hospice Heritage: Celebrating Our Future, 2020
Caregivers of many disciplines involved in the care of the dying and bereaved had begun to meet and present research findings through organizations such as the Foundation of Thanatology at Columbia University under the leadership of Dr. Austin Kutscher. In 1974, Dr. John Fryer and Ken Spillman of the Philadelphia Ars Moriendi group organized the first meeting of what later became the International Work Group on Death, Dying and Bereavement. This meeting was attended by leaders in the field from around the world. Dr. Cecily Saunders spoke about St. Christopher’s Hospice, Florence Wald shared issues involving the development of the Connecticut Hospice and Dr. Balfour Mount spoke of the development of the Palliative Care Unit at the Royal Victoria Hospital. Dr. Robert Jay Lifton presented his work on Home from the War, an analysis of veterans who returned from the Vietnam War (Lifton, 1973). The conceptual model of his book is of death and the continuity of life-a model that also underpinned hospice.
Communication in Palliative and End-of-Life Care
Published in Victor R. Preedy, Handbook of Nutrition and Diet in Palliative Care, 2019
However, in the 1950s and 1960s new research started to emerge in Europe, identifying important new insights into the components of care for the dying (Clark 2007). In North America it would be the work of a clinical psychiatrist named Elizabeth Kubler Ross who brought to the fore the importance of care of the dying in her seminal book, published in 1969, entitled: On Death and Dying (Kubler Ross 1969; Doka et al. 2011). These events ushered in a new field of study known as thanatology, the scientific study of death and the practices associated with it, including the recognition of a response to needs of the dying patient and their families (Doka et al. 2011).
Grief and Bereavement
Published in Stephen R. Connor, Hospice and Palliative Care, 2017
There has been discussion of the qualifications necessary to do grief counseling or therapy. The only recognized certification available is certification in thanatology, through the Association for Death Education and Counseling. Hospice staff who do grief counseling usually have a background in social work or pastoral care and receive on-the-job training. The majority of family members’ grief support needs can be met by using volunteers. Most hospices train volunteers to assist in providing support to the bereaved. In the United States, regular trained hospice volunteers will sometimes specialize in bereavement follow-up and be given some additional training.
What organizational and business models underlie the provision of spiritual care in healthcare organizations? An initial description and analysis
Published in Journal of Health Care Chaplaincy, 2022
Aja Antoine, George Fitchett, Deborah Marin, Vanshdeep Sharma, Andrew Garman, Trace Haythorn, Kelsey White, Amy Greene, Wendy Cadge
Across many of our interviews the prevailing theme related to chaplains’ work with patients and families was that chaplains will be the first person they page when “…the teardrop falls, when a family's upset, when a patient's depressed. When they don't know who else to call and somebody's dying, when they're trying to get decisions made when they've got yelling and screaming and physical altercations in the hallway.” Almost all of the spiritual care departments studied listed different initiatives related to patients who are actively dying or at the end of life such as companion programs, passage quilt programs, prayer or remembrance services and music-thanatology.
Palliative Care and Thanatechnology
Published in Progress in Palliative Care, 2022
The term thanatechnology was coined by Sofka in the 1990s with reference to then current and emerging communication technologies that could be used to facilitate death education, grief counselling and thanatology research. Sofka and colleagues4 later described it as ‘a conduit for living, dying, and grieving in contemporary society’. Over the following decade, the use of various digital technologies spread widely to influence nearly all aspects of modern life, including a variety of social media platforms used in both professional and non-professional contexts. However, implications of this growing use, from a thanatological perspective, may not be obvious to users.