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Establishing a pulmonary rehabilitation programme
Published in Claudio F. Donner, Nicolino Ambrosino, Roger S. Goldstein, Pulmonary Rehabilitation, 2020
Michael D.L. Morgan, Sally J. Singh
A well-run programme should regularly produce service audit reports. At the centre of this would be the process data, including for example the number of patients offered and completed rehabilitation and importantly the clinical outcome data for the service. There is no international agreement as to what comprises a minimum dataset, but it would be unacceptable not to report changes in dyspnoea, health-related quality of life and exercise capacity. In the UK, a national minimum dataset has been defined for PR programmes across England, Scotland and Wales. Data are uploaded on a continuous basis, and participating centres can benchmark their performance against the national averages. It would be anticipated that centres are able to achieve similar results to the published research studies.
Accident and Emergency Departments
Published in Andrew Stevens, James Raftery, Accident and Emergency Departments: Health Care Needs Assessment, 2018
B Williams, J Nicholl, J Brazier
The national minimum data set should be provided by A and E provider units as soon as possible. Regional and national overviews of provider performance should be arranged by suitable downloading of data. Attempts should be made to identify more fully the discrete costs of major and minor A and E departments and their component services. Providers should collaborate with other agencies in collecting a standard core data set on accident cases.
Ethnic differences in acute promyelocytic leukaemia between New Zealand Polynesian and European patients
Published in Hematology, 2021
Chris Varghese, Valery Yizhuo Liu, Tracey Immanuel, Nicole Chien, Taryn Green, George Chan, Edward Theakston, Maggie Kalev-Zylinska
The NZCR was queried to collect demographic data on APL patients diagnosed in all national centres for the period between January 2000 and December 2017. The NZCR has been collecting data on all malignant tumours diagnosed in New Zealand since 1948. The primary function of the registry is to provide information on the incidence and mortality from cancer. The registry follows guidelines for recording and reporting cancer incidence recommended by the International Agency for Research on Cancer and the International Association of Cancer Registries. Clinical laboratories are the primary source of data for the registry, with diagnostic information collected from pathology reports. Patient records are checked against hospital discharge information on the National Minimum Dataset. Ethnicity is assigned according to the Ministry of Health’s Ethnicity Data Protocols, where the respondent must identify their own ethnicity (self-identification). For the purpose of this study, APL patients recorded in the NZCR were identified based on the ICD-10 code C92.4. Data on ethnicity, age, gender, date of presentation and death were extracted on 14 April 2020, and analysed after de-identification.
Button battery exposures in Australian children: a prospective observational study highlighting the role of poisons information centres
Published in Clinical Toxicology, 2019
Rose Cairns, Jared A. Brown, Kishen Lachireddy, Carol Wylie, Jeff Robinson, Andrew H. Dawson, Nicholas A. Buckley
This study also highlights the usefulness of PIC data for surveillance and product safety purposes. Australian PICs have agreed to continue button battery surveillance with a national minimum dataset. Data collected in this study has been presented to State and Federal consumer protection/Fair Trading bodies, child safety agencies and health departments. It is hoped that this data can inform existing and future prevention campaigns and product safety initiatives.