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The rhetoric of dying in home
Published in Suhita Chopra Chatterjee, Jaydeep Sengupta, Death and Dying in India, 2017
Suhita Chopra Chatterjee, Jaydeep Sengupta
LTC arrangements have been worked out in different ways by different countries. For instance, in the U.S. most Long Term Care at home includes services of nurse, home care aide and/or therapist who come to the home to provide assistance with both basic and instrumental activities of daily living also known as ADL and IADL. These home services are backed by other community support services. Older Americans Act of 1965 (OAA) promotes the well-being of older individuals by providing services and programs designed to help them live independently in their homes and communities. The act also empowers the federal government to distribute funds to the states for supportive services for individuals over the age of 60. For over 35 years, (The) Administration on Aging (AOA) – the principal agency of the U.S. Department of Health and Human Services – has provided home- and community-based services to millions of older persons through the programs funded under the OAA. Services include, but are not limited to, transportation, adult day care, caregiver support and health promotion programs.
Factors Related to Client Satisfaction with Community-Based Respite Services
Published in Rhonda J. V. Montgomery, A New Look at Community-Based Respite Programs: Utilization, Satisfaction, and Development, 2014
Donald Townsend, Karl Kosloski
The caregiver’s health was positively associated with greater satisfaction with adult day care. Health is more likely to be a factor in situations where the caregiver must get the patient ready to go to the day care center and then, in cases where transportation is unavailable, actually take the patient there. In such cases, healthier caregivers are better able to endure the physical costs associated with using an adult day care center. None of this is an issue when the respite worker comes to your home–such is the case with in-home respite–and this fact is reflected in the differential effects for caregiver’s health associated with the different types of respite.
Chronic Disorders and Families: An Overview
Published in Froma Walsh, Carol Anderson, Chronic Disorders and the Family, 2014
Multiple family groups are particularly relevant with these populations since they can provide a vital network function for families who have common problems, who have been isolated, or who have been stigmatized by the patient's chronic problems (Anderson, 1982; Anderson et al., 1980; Steinglass et al., 1982; Strelnick, 1977; Zarit & Zarit, 1982). Multiple family groups during inpatient hospitalizations as well as during the post-hospital phase of illness give patients, parents, siblings, and spouses the opportunity to share similar experiences, provide mutual ongoing support, and expand one another's repertoire for crisis management and reduction of stress and conflict. These same goals can, and often are, addressed in self-help groups which provide support and information along with the opportunity to perform a helping role in relation to similar families struggling with similar problems. Members of these groups can provide a kind of assistance that cannot be obtained from even the most talented and understanding professionals, who by and large have not experienced living twenty-four hours a day over a period of years with severe and often life-threatening problems. Furthermore, these groups can develop valuable advocacy functions to increase the contributions of local, state, and federal resources. Adult daycare for patients and their families is another option to partially relieve family burden.
Correlates of Physical and Emotional Strain Among Older Adult Caregivers
Published in Journal of Gerontological Social Work, 2023
The COVID-19 pandemic has posted unprecedented challenges to caregivers that can exacerbate their caregiving strain, such as difficulty in scheduling doctor’s appointments and getting in-home and community care services (e.g., meals-on-wheels, transportation, adult day care) for their loved ones. Moreover, some caregivers face the problems with visiting their elderly family members residing in long-term care facilities. Even though most care services may have reopened by now, older caregivers may still not use them for fear that they and their loved ones could be exposed to and contract the coronavirus (Phillips et al., 2020). While this study did not directly measure physical and emotional strain as a result of the pandemic, it helps us anticipate the risk and protective factors for physical and emotional strain among older caregivers amid the pandemic and necessitate an immediate focus on prevention of and intervention for physical and emotional strain.
Barriers to Aging in Place for Rural, Institutionalized Older Adults: A Qualitative Exploration
Published in Clinical Gerontologist, 2022
Claire Quinlan, Christine McKibbin, Cari Cuffney, Ross Brownson, Carol Brownson, Jeff Clark, Lisa Osvold
Additionally, informal caregivers have difficulty accessing governmental or nonprofit assistance due to barriers of awareness and accessibility, which often are rurally localized (Rosenwohl-Mack et al., 2020; Stirling et al., 2014). This has been evidenced by service gap analyses which showed the greatest gap between wanted and received services to be caregiving assistance (Hill, 2001), with respite care as the most frequently requested but most under-utilized service (Labun, 2000). In Wyoming, caregiver support services are among the least available in this state: adult daycare is only available in 5 of 23 counties, despite the fact that it has been shown to ease caregiver burden in both the long and short term (Iecovich & Biderman, 2013; Steinman et al., 2016; Zarit, Parris Stephens, Townsend, & Greene, 1998). Expansion of adult day care programs, for example, represents the intersection of cost-effective and person-centered senior services (Oliver & Foster, 2013).
Using Focus Group Feedback to Identify Patient-Centered Initiatives for Older Persons with HIV
Published in Clinical Gerontologist, 2022
Chelsie O. Burchett, Megan Johnson Shen, Ryann Freeman, Liz Seidel, Stephen Karpiak, Mark Brennan-Ing, Eugenia L. Siegler
The Older Americans Act (OAA) has underwritten community-based services that provide support to enable older adults to remain independent. Some of these services include home-delivered meals, transportation, nutrition education, counseling, legal assistance, and adult day care programs (National Committee to Preserve Social Security and Medicare, 2016). Authors of the OAA, which was passed in 1965, could not have anticipated the unique and emerging needs of OPH. OPH often face increased and overlapping medical and mental health challenges and are less likely to seek and access support from social and institutional settings among all older adults (Quinn, Sanders, & Petroll, 2017). The median age of OPH ranges between 58–59 years old, they are largely ineligible to receive the services they require from programs such as the OAA (Brennan-Ing, 2017). Research focused on the stigma and discrimination faced by older adults and those with HIV have identified the inequities faced by these groups, but often fall short when addressing the intersecting ways that OPH are disadvantaged and often unable to participate in mainstream older adult services, (Cox & Brennan-Ing, 2017) or how OPH are disproportionately impacted by gaps in the health care system (Subica & Brown, 2020). Efforts to reduce stigma and expand support for OPH are given low priority, and few effective programs are available (Mahajan et al., 2008). This can be detrimental to the wellbeing of OPH, especially in times of wide-spread pandemics such as they are now experiencing with COVID-19.