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Evaluation of the Transprofessional Model of Home Health Care for HIV/AIDS
Published in David Alex Cherin, G. J. Huba, AIDS Capitation, 2021
David A. Cherin, G. J. Huba, Diana E. Brief, Lisa A. Melchior
Given the non-linear, episodic nature of the trajectory of AIDS, hospice programs, as currently operationalized in the U.S., do not provide the cost savings seen with other, more predictable terminal illnesses. For instance, cancer’s progression through a series of disease stages allows for a somewhat orderly planning of hospice care. The disease trajectory of cancer, upon which most hospice regulations are based, and the fact that its victims are primarily over 65 years of age, have yielded some predictability (Butterfield-Picard & Magno, 1982). In the care and planning of care for these patients, the disease has a linear progression. By contrast, AIDS patients can suffer serious, life-threatening episodes after which they regain (for a time) measures of health and functioning. Thus the trajectory of AIDS is often periodic. This phenomenon-common to AIDS patients-is known as the Lazarus Syndrome (Foley et al., 1995). The syndrome is complicated by the use of the new HIV/AIDS medications, including the protease inhibitor combination therapies.
Development of palliative medicine in the United Kingdom and Ireland
Published in Eduardo Bruera, Irene Higginson, Charles F von Gunten, Tatsuya Morita, Textbook of Palliative Medicine and Supportive Care, 2015
82 Goodman E. Living with AIDS: The Lazarus Syndrome. Baltimore, MD: Baltimore Sun, March 18, 1997, p. 9A. 83 Staszewski S, Morales-Ramirez J, Tashima KT et al. Efavirenz plus zidovudine and lamivudine, efavirenz plus indinavir, and indinavir plus zidovudine and lamivudine in the treatment of HIV-1 infection in adults. N Engl J Med 1999; 341: 1865-1873. 84 Bica I, McGovern B, Dhar R et al. Increasing mortality due to endstage liver disease in patients with human immunodeficiency virus
Revisiting the “Lazarus Syndrome”
Published in Barbara I. Willinger, Alan Rice, A History of AIDS Social Work in Hospitals, 2012
Five years have passed since the term Lazarus Syndrome was first used in reference to HIV/AIDS patients, yet many of the same symptoms (i.e., depression, anxiety) and struggles with life issues still persist. This chapter focuses on these ongoing life issues, struggles, and challenges that resulted from improved medications and longer life expectancy. As social workers, we have a responsibility to keep up with the changes in treatment for HIV/AIDS and to help patients develop the skills to cope with these new life issues.
Opting Out: Aging Gays, HIV/AIDS and the Bio-Politics of Queer Viral Time
Published in Journal of Homosexuality, 2022
I learned about this group’s existence while interviewing a former director of a nonprofit organization dedicated to supporting individuals and families impacted by HIV/AIDS. She put me in touch with Thomas, the group facilitator, who then wanted to meet me prior to a group meeting in order to explain the group’s objectives and interests and to confirm that I met the basic criteria for group admission. Before our meeting, Thomas informed me in a text message that the group is only for gay identified men who have been living with HIV for a prolonged period of time (this period was not defined, although as I would soon discover, most members have been HIV+ for more than 20 years). At our first meeting at a restaurant in the core of Toronto’s “gay village,” Thomas, who looked to be in his early 60s, greeted me with a friendly smile and began by telling me that the group was, “totally separate from any other (HIV/AIDS service) organization in Toronto: “We have issues with them … so we’re doing things for ourselves … ” He then handed me a photocopied set of notes that described the group’s formation and its principles: The group had been going for about 15 years, and was formed through a network of gay men living with HIV in and around Toronto who had stopped attending local HASOs for various reasons (some of which will be outlined below). Thomas explained to me that this group of gay men was dealing with the challenge of being alive after they had believed for many years that they would die from AIDS, because most members were diagnosed before the systematic rollout of ART. The photocopied notes referred to this as the “Lazarus Syndrome” a term found in some HIV/AIDS literature to describe how individuals suffering from AIDS symptoms and often near death were “saved” by the arrival of ART treatment and thus “raised from the dead.” Thomas added that the group was also formed out of their shared sense that no existing HASO was adequately addressing issues that matter to them. He went on to tell me that the group had no leaders and no particular format. Rather, at each meeting, members talked about their experiences, and particular themes would then organically emerge. Thomas repeatedly pointed out that this was not a “therapy or support” group like those found in some of the HASOs, where there were particular agendas and/or therapeutic objectives.