Emotional Wellness and Stress Resilience
Gia Merlo, Kathy Berra in Lifestyle Nursing, 2023
Work-related stress and exposure to trauma can build over time and spill into other aspects of life and functional status, in the form of burnout (Beck, 2011; Delgado, Upton, Ranse, Furness, & Foster, 2017). While burnout is not a diagnosable condition in the United States, it has been recognized as an important construct and is listed as a condition in the ICD-10 (Merlo & Rippe, 2020). Burnout is defined as a state of total mental, physical, and/or emotional exhaustion, often in the context of chronic stress (American Psychological Association, 2021b). The term burnout is typically applied to professional exhaustion, and much of the research has been conducted among individuals in caregiving professions, such as nursing. Burnout is associated with a decrease in motivation, changes in performance, and negative perception of self. Research suggests that burnout tends to build over time, and with greater burnout, employees tend to experience greater perceived work stress. Thus, stress and burnout are mutually reinforcing (de Oliveira et al., 2019). Of note, caregiver stress and caregiver fatigue are distinct from burnout, as they refer to the stress and multidimensional fatigue when caring for a family member or loved one (i.e. a parent with dementia), rather than professional caregiving (McDaniel & Allen, 2012). One of the most potent influencing factors on stress, trauma, and burnout is resilience.
Postcolonial midwifery
Hanna Laako, Georgina Sánchez-Ramírez in Midwives in Mexico, 2021
Nevertheless, currently this global mobilization has expanded and articulated itself rather from the viewpoint of human rights in childbirth, which combines midwifery activism with reproductive rights in maternal health. Sarelin (2014b) demonstrates that women now are using human rights as legal and political tools to demand change in childbirth. According to Sarelin (2014b), viewing childbirth mainly as an issue of access to healthcare is changing and subject to a new set of questions: who decides how a baby is born? Who chooses where birth takes place? Who bears the ultimate responsibility for the outcome of a birth? What are the legal rights of birthing women? What are the responsibilities of the caregivers—doctors, midwives, nurses and other attendants? What are the rights and interests of the unborn and how do we protect them during childbirth without subsuming the needs of the mother to the perceived needs of the child? Sarelin (2014b) argues that the global human rights in childbirth movement: (1) seeks a system in which women own their own births; (2) demands women-centered care instead of practitioner-centered care, which usually implies prioritizing midwifery care; and (3) demands that women be respected as decision makers in birth.
Caregivers in Patient- and Family-Centered Care
Amy J. Litterini, Christopher M. Wilson in Physical Activity and Rehabilitation in Life-threatening Illness, 2021
For both paid and unpaid caregivers, burnout can be a substantial problem, manifested by emotional, physical, and mental exhaustion. Rates of burnout are particularly high in healthcare, especially for those caring for individuals at the EoL who present with multiple, complex needs in often challenging settings. According to the results of an electronic survey regarding the predictors and prevalence of burnout of hospice and PC clinicians by Kamal et al.,12 respondents (n = 1,357) demonstrated an overall burnout rate of 62%. The majority of burnout in this study was associated with emotional exhaustion.12 For paid caregivers, poorly managed burnout can ultimately pose limitations within one’s chosen field and/or their career trajectory due to poor job satisfaction, which can ultimately reduce the quality of job performance. If left unchecked, burnout can result in multiple detrimental effects across many facets of both professional and personal life. Compassion fatigue is a phenomenon associated with a reduced capacity for empathy due to repeated exposures to witnessing patients’ suffering.13 Peters13 theorized that compassion fatigue can result in unsatisfactory outcomes for providers, the patients receiving their care, and healthcare organizations.
Overload and Emotional Wellbeing in a Sample of Spanish Caregivers of Alzheimer’s Patients during COVID-19 pandemic
Published in Experimental Aging Research, 2023
Álvaro Rodríguez-Mora, Tania Mateo Guirola, José M. Mestre
SPSS v.20.0 statistical software was used for the statistical analysis. A descriptive analysis of the sample was carried out to explore the profile of both types of caregivers. Before hypothesis testing, normality was tested using the Shapiro-Wilk statistic and homogeneity of variance using Levene’s statistic. Non-parametric tests were applied for the BDI-II. Parametric tests were used for the rest of the instruments. Correlational tests (Spearman) were performed between the variables of perceived changes in the care situation caused by the pandemic situation and emotional overload and wellbeing. Finally, a simple linear regression was performed to determine which variables of the perceived changes in the care situation caused by the pandemic situation would be predictors of overload and emotional wellbeing. The predictors were added in descending order of their corresponding correlation coefficient. A minimum confidence level of 95% (p < .05) was established.
A systematic review and qualitative synthesis of the experiences of parents of individuals living with Duchenne muscular dystrophy
Published in Disability and Rehabilitation, 2023
Clare M. Donnelly, Rosaline M. Quinlivan, Aaron Herron, Christopher D. Graham
The final analytical theme “Uncertainty as Ever Present” demonstrates the challenges parents face when planning for the future with their child’s ever-changing needs. Therefore, quantitative findings regarding greater prevalence of depression and, particularly, anxiety, amongst parents of individuals with DMD are not surprising when considered alongside this theme [13,59]. The precarity of their child’s health and uncertain future means that uncertainty must be tolerated. This may be compounded by the responsibilities of the caregiver role. For example, where parents indicated difficulty sleeping due to fears that not monitoring their son’s ventilation equipment could result in death [18]. On the other hand, there is variation between parents, with some coping well within this uncertain context, having developed a tolerance of uncertainty and resilience [8].
A Systematic Literature Review of the Impact of COVID-19 on the Health of LGBTQIA+ Older Adults: Identification of Risk and Protective Health Factors and Development of a Model of Health and Disease
Published in Journal of Homosexuality, 2023
Alexander Moreno, Salima Belhouari, Alexane Dussault
To promote advanced care planning for LGBTQIA+ older adults. Medical power of attorney, living wills, and hospital visitation directives describe wishes for care and could be needed if an LGBTQIA+ older adult contracts COVID-19 or develops a disease leading to difficulties to express their wishes. LGBTQIA+ older adults often rely on people who are not legally recognized (e.g., family of choice, partners). It is important to legally include these chosen family caregivers in decision-making in case medical and/or palliative care were needed.To provide resources to support family caregivers emotionally and financially. Being a family caregiver can lead to stress, isolation, and even burnout. It is important to spread information about the unique challenges and complexities of caring for an LGBTQIA+ older adult. Reaching a point of understanding could ensure that organizations develop meaningful relationships with different family caregivers taking into account their singular realities (Boehmer et al., 2018; Glaesser & Patel, 2016; Shiu et al., 2016).
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